I am so honored to be recognized with so many amazing bloggers to be named one of Healthline.com’s Best Parkinson’s Blogs of 2015. It means so much to be chosen for this award. It is my goal to provide you, my readers, with information that is educational, interesting and entertaining, uplifting, hopeful, and sometimes even humorous. Thank you to all of you who take the time to read this site, refer and share this site, and take time out of your busy day to see what I dream up!
Laughter, giggles, chuckles, guffaws, and smiles are powerful tools for us to help ourselves–I hope the creation below does one of those for you!
April has been proclaimed to be Parkinson’s Awareness Month, but just how aware are we really of Parkinson’s disease?
Those of us living with the illness as well as our care partners, caregivers, and close relatives, are all well aware of the physical, the mental, and the spiritual toll that Parkinson’s can take. Unless you live with the disease on a daily basis, it is difficult to comprehend the wide range of symptoms, drug side-effects, and varying degrees of overall health issues that are truly Parkinson’s related—but I ask, how much real awareness is there of this disease?
Just getting a diagnosis with Parkinson’s can be an arduous endeavor. The journey with Parkinson’s is riddled with unknowns that neither scientists nor neurologists can explain, at this time. Dedication to unraveling the mystery of our gray matter is crucial to ending all neurological disorders.
In 2017, the bicentennial of James Parkinson’s observations and discoveries will be recognized. If you look at the landscape of successes in battling this illness, for all the time, money, and attempts at awareness, there is so much need that is left unmet. After all this time, there is still so little known about this elusive condition.
Maybe, spreading awareness and information, when at all possible is a key. Consider sharing your story with the uninitiated and those who are unfamiliar with Parkinson’s, for this offers an opportunity to demystify an illness that is so unique for each individual. Let’s not limit Parkinson’s awareness to just 30 days!
April has been declared to be Parkinson’s Awareness Month. So, I pose this question to you—what does that mean? If you or someone you care about is dealing with the symptoms of Parkinson’s disease (PD), I hope that maybe you will volunteer for your favorite organization, consider a donation of time and or money for advocacy, educate the onlooker to why you move the way you do or just educate yourself and those around you about the illness.
10. Parkinson’s disease is not just for the elderly. It doesn’t care how old you are. I was in my early 20’s when I was officially diagnosed.
9. Parkinson’s disease is unique for each and every patient. No two of us are alike, making this illness even more perplexing.
8. Dyskinesia or erratic and often uncontrollable jerking movements is a side effect of medication and not due to the disease. PD can alter the strength of the voice.
7. Often, people with Parkinson’s may stop or even freeze in a doorway for some unknown reason. A solution as simple as a light touch can assist them through the door.
6. Timing of a Parkinson’s patient’s medicine regimen is crucial to maintaining their daily activities. One missed dosage can disrupt the whole schedule.
5. Parkinson’s disease’s gold standard drug, Levodopa-Carbidopa is over 50 years old and remains the best drug available.
4. Parkinson’s disease can affect the mind, body, and spirit of the patient. Cognitive problems may or may not arise, tremor, rigidity and balance issues may occur, and many patients may deal with depression and anxiety or more.
3. Deep Brain Stimulation (DBS) is an option for some PD patients but it is not a cure. DBS is brain surgery and it does not stop the disease progression. It may lower your dosage of medicine but usually you remain on some medicine.
2. The discovery of Parkinson’s disease is nearing its 200 year anniversary and the illness is still not fully understood how or why it exists.
1. Currently, there is no official count for Parkinson’s disease for just how many people in the United States have the illness. We guess and estimate between 500,000 and 1.5 million but there could be many more. Without some form of data collection we just don’t know.
If you would like to learn more about any of the 10 pieces of awareness listed, please visit my helpful websites list on the right hand side on this site.
Just in case you missed it, here is the video link to the Champions of Change for Parkinson’s disease.
The event was held at the White House.
Left to right: Karl Robb, Angela Robb, Greg Wasson, Davis Phinney.