Potential Cures May Be Coming

We Need A Cure

Doing what is right isn’t always easy. It’s not always popular and sometimes it may be misunderstood. I am not a scientist but I do know that not long ago brain surgery, heart surgery, and organ donation were considered to be taboo. These medical procedures have saved millions. In the past 75 years modern medicine has gone from thinking that hands should not touch the human heart to DNA to mapping the human genome. I would categorize these life-giving procedures to be monumental leaps in the right direction. Many of the people that I love are still here because of these relatively new and innovative medical procedures. As one of the over one and a half million people with Parkinson’s disease, I have been waiting for a cure for over 20 years.

American innovation is what made this country a world leader. I am an inventor. I have Parkinson’s Disease. It’s a disease that I have battled and lived with for over 20 years. I’m currently 42 years old. Parkinson’s Disease robs you constantly of independence and dignity. As someone with young-onset Parkinson’s, I am fortunate that the progression of this disease is slower than many forms. Since I was 17, I have watched my balance, speech, coordination, agility, and gait falter due to this chronic illness. I have watched friends divorce, get hospitalized, and die from Parkinson’s.

President Obama’s lifting of the federal restrictions on embryonic stem cell bill offers hope and promise for those people and their families suffering from chronic disease and spinal cord injury. I hear people ask me “Why do the research?” My answer is how are we ever going to know if we don’t try? I think the American ill deserve any potential cure that medicine can create. If it means using something that is going to be thrown away, a part of it can live on and ease suffering.

Everyone gets sick at some point in his or her life. I didn’t get sick on purpose and I had very little control over Parkinson’s. There is no known cure and scientists still don’t know what causes it. Even if you don’t have a chronic illness now, you or someone you love or care about very well may. It’s a sad reality.

Stem cells show great promise and are already being used, but the lines available right now are limited and may be tainted. This bill may change those limitations. I am tired of waiting for a cure and I know that I am not alone. It’s taken over 8 years to make this day a reality. This isn’t a partisan issue. I think the real issue here is the hope of giving people back their lives.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on March 10, 2009, in Health, Parkinson's Disease, Uncategorized and tagged , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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