Monthly Archives: July 2010

Is there a Parkinson’s profile?

More Apps for Parkinson’s coming soon!

Is there a profile for the person who gets Parkinson’s disease (PD)?  It’s a question that I have put to some of America’s top Neurologists (not scientifically) and as expected some say that there may be a certain personality type and some say that there is no evidence for any type of profile. What if , just maybe, Science is missing a large component of the causal mystery of PD and that cause is even more than the suspect of genes and environmental toxins?

Having had PD for close to 25 years, I have met and spoken to several hundreds if not thousands about PD and their symptoms. Here is a discovery that I have  made and loosely base what I see as a potential profile for many of the people that I have met with PD:

  • People with Parkinson’s are consistently kind, sensitive, and compassionate.
  • People with Parkinson’s are achievers, driven, well-educated and well-informed.
  • People with Parkinson’s are problem-solvers, artists, creative, and people of innovation.

As much as I abhor labeling and profiling, maybe there is someting to this. I’m not a scientist, doctor,or anthropologist, but I can’t discount my observations and experiences.  What do you think? Please subscribe, comment, and share if you like my blog. Thanks.

Apps To Help Parkinson’s Disease?

PD Apps

A good App should make your life easier, educate, entertain, inform, or enlighten. For someone with Parkinson’s  disease (PD) who is seeking relief from  a wide range of symptoms (voice, balance, tremor, gait, and memory to name a few) there just may be an App for your iphone  or smart phone–and it may even be FREE!

The following are a just a few Apps that I have uncovered and use. While I have no medical data or solid evidence that they are making any real change, all I can do is suggest that you give it a try and see if they work for you. Here you go:

1) Voice Recorder – The voice recorder on the Ipod touch and Iphone is a marvelous tool to test the quality, strength, and loudness of your voice. The Program is simple to use and a great way to get instant vocal feedback on your own.

2) Speechie- Is a free text to voice App. The Program provides the user with a choice of 5 different voice options. All that is required is for the user to type in what he/she wants the voice to say, tap the button and the voice speaks what you wrote. It’s that easy! If you want to complicate it, the Program allows you to alter the speed and pitch of the voice. Speechie may be helpful for anyone who can still type but has difficulty with speech.

3) Sound Level-is a free App(or pay for a version) that monitors the loudness of sounds–it’s your own portable sound meter. This may just help you monitor and maintain a louder voice and keep people from asking you to speak up.

4) Lists-I love a good list and I find that a list can often help keep me organized. Lists is an organizational genie as it allows lists with sub-lists within sub-lists. The App is easy to use and worth the time!

5) Sleep Machine-has a free and paid App (paid App has more sounds) made to lull you to sleep. Select from a variety of sounds to send you off to lala-land. Crickets, wind chimes, and pouring rain are just a few of the many soothing sounds from which to choose.  PD patients can face sleep problems that only exacerbate our symptoms when we aren’t totally refreshed. Now, there may be a free App to relax you and help you get a few more winks.

If you  have any favorite PD related Apps, let me know!

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