Parkinson’s Action Network (PAN) Meets in DC

Next Monday, hundreds of the United States’ most dynamic and involved advocates for the rights and issues affecting people with Parkinson’s Disease will convene in our Nation’s capital. The goal is to be heard and represented but mostly to be understood that we, as a collective force need better funding and services.

Neurological disorders are rising as is the aging population. Even more importantly, younger and younger people are receiving neurological related diagnoses that one might find in an older patient. Whether the cause is our growing toxic world and/or a genetic component that gets triggered or some cocktail of switches, a desperate portion of our population seeks a solution to a real problem that plagues them everyday, all-day.

In less than a century our country replaced vacuum tubes for Silica chips, went from the horse-drawn carriage to the space shuttle, put a man on the moon, and mapped the human genome. Where is the push to eradicate or even slow neurological illnesses? Great strides have been made in other diseases. New therapies and drugs, while slow to come, only slow or mask symptoms. It is time for a push and a unification of voices to be heard in DC and across the nation that more must be done.

The PAN advocates are coming to DC to speak for the countless victims, both directly and indirectly, touched or shaken by Parkinson’s Disease. They are speaking for those who are unable to speak for themselves.

To learn more about PAN and to view an online webcast of our symposium, go to www.parkinsonsaction.org.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on February 24, 2011, in Education & Support, Health, Parkinson's Disease, Politics and tagged , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: