Monthly Archives: March 2011
Support groups are just a place for people to commiserate and belly ache, or at least that was what I thought they were. I had attended a group for a year or so, but inconsistently, for that very reason. I was finding that meeting with the group was having the opposite effect of what I had hoped to achieve. My intention for going to these groups was to learn, to be inspired, and to come away with a better strategy of how I might live my life with Parkinson’s Disease. Rarely, did I get that satisfaction. I don’t blame the leader or the group, the meeting just wasn’t ran that way and the patients in the group weren’t in a place for my type of meeting.
Some support groups are instant successes and others may take delicate pruning. The support group is an ever evolving entity as it rotates new as well as older members. I have seen Parkinson’s Disease support group members range from the ages of 25 to 75 years of age. A support group binds everyone in that meeting for one unified purpose that transcends all cultural or social labels. Rich or poor, famous or not, each of us is there to learn, share, educate, laugh, strategize, congregate, and gain a new perspective.
My vision for a support group came from what I selfishly needed. I wanted to develop a safe and welcoming environment where the group felt comfortable to be at ease enough for 2 hours to be themselves. I saw this support group as an opportunity to develop true meaningful dialogue between patients and even carepartners. I take great joy and no credit for the amazing transitions that I continuously see in members. Once quiet members who kept to themselves or who had little or nothing to say, now take the initiative to embrace new members in need and are always willing to add thoughtful and meaningful commentary. Watching the group grow and take shape has been a labor of love.
I must admit, I think the group is 8 years old but it could be slightly older. On the evening of our inaugural meeting, my wife, Angela, and I had no idea how many people to expect. It was a cold damp March night and I was sure no one would come. Much to my amazement, one couple showed up and I am so proud to say that they are our dearest of friends and remain in our support group after all this time.
1. Why isn’t there a National CareGiver’s Appreciation Day?
2. Why isn’t there a day devoted to remembering friends and loved ones who have left us?
3. Why do we (the USA as a culture) shy away from the ill, the frail, and elderly, when they need the assistance the most?
4. Why don’t we educate students in high schools, colleges, or even younger kids with classes on illnesses and illness sensitivity training?
5. Don’t the ill and disabled have even more to teach than the healthy person, because they live with an even greater challenge than those of us living with a fully functional body?
6. Shouldn’t caregivers and carepartners receive a stipend or tax break for all that they do to take care of their loved ones plus keep them out of hospitals and nursing homes?
7. Why can’t we have a more progressive healthcare and insurance system that rewards proper nutrition and self-care with lower doctor bills and reduced insurance rates?
8. When are doctors going to come around and finally embrace complimentary therapies instead of the old cliché response, “Well, you can do it as long it doesn’t do any harm, I suppose.”?
9. Are we ever going to hear a doctor admit that he/she was ever wrong or made a mistake?
10. When is the medical community going to stop treating people with illnesses as someone who is incapable of making choices or knowledge of their own condition? Who is more knowledgeable of illness, the person living with it on a daily basis, or the doctor trying to treat and maybe even cure it?
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Thanks for reading!
I am constantly amazed at the beauty of the rising and setting of our sun. I hold a great appreciation for the beauty of the night sky. This week’s picture captures what was a truly inspiring sunset.