The Media and Parkinson’s Disease

I read a story from a major newspaper that gave incomplete and not entirely accurate medical advice to a reader. This is the second piece of blatant mis-information that I have seen on the Web. It bothers me when I see advice about Parkinson’s disease that leaves out vital information, quotes antiquated research, or is just plain wrong.

Use the information that you get from the media, wisely. Do some of your own investigation and see what other resources say.  See if  doctors,researchers, patients, or caregivers have anything to say about what was written or said. Just because it is in print doesn’t mean it makes it fact.  Get your medical research and information from reliable sites that are credible like associations, foundations, universities/colleges, and of course hospitals and clinics. (A brief resource list is on the right –for a start.)

It is important to weed out misinformation about Parkinson’s disease or any condition. inaccurate medical advice can be harmful. Stay informed.  That’s my opinion——this is not medical advice and I am not a doctor.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at, visit his blog at, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on October 10, 2011, in Health, Media & Trends, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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