There Are Such Things As Miracles–PART 1

 Life on many levels can be difficult and challenging, whether one has Parkinson’s disease (PD) or not.  The added challenge of PD only accentuates the necessity of taking better care of oneself.  It is when we neglect ourselves or fail to listen to the cues presented by those around us that we miss important and even life-changing  messages that need addressing.

The older I get, the more I am beginning to believe that things happen in life for a reason. My belief is that somewhere in the happening  there is a nugget of wisdom to be mined. There may be an appearance  of  randomness  to our lives but in reality there really is true order.  Coincidences  are often messages  of unfinished business  that may need to be addressed.

Several years ago, a friend put me in touch with a Speech Language Pathologist, named Samantha Elandary.  Samantha founded what is now the Parkinson Voice Project, in Dallas, Texas, formerly the Texas Voice Project.  When I had returned from Dallas almost 7 years ago, I found my voice had improved from just a few days of therapy.  Time passed,  and this year I ran into Samantha twice at 2 different Parkinson’s events.  At the second event, she told me about how her voice program had evolved and she invited me to Dallas to see and experience the power of her voice program. As one who is fluently challenged, at times and speaks publicly, I accepted her offer to improve my speech,  fluency, and loudness.

I have been accused of being hyperbolic with my words on several occasions but what I saw for others as well as myself is nothing short of miraculous. People with PD and soft or weak voices were regaining their lost voice.  How easily we discount the importance of voice, inflection,  and the self-esteem that is attached to being heard and understood.  The Parkinson Voice Project is fighting to help people with PD regain and maintain their identity and their voice.

What I saw for myself was an increase in volume, improved clarity, and a fluency that I had not seen for years.  I saw people in the Parkinson Voice Project center smile with pride as their voice came back and tears of joy from their care-partner  because now their spouse could be heard. The old saying that you don’t know what you’ve got until it’s gone is true, especially in this case and for many of us if we don’t pay close attention we won’t realize that something needs fixing. For me, I am so grateful to hear such a dramatic change in my speech. I can also speak for my wife that she is so happy not to ask me to repeat myself.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN). In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master. Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations. You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd. I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog. I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

Posted on November 6, 2011, in Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 3 Comments.

  1. Amen!! When one has bodily changes from a movement disorder, it is easy to get focused and at times overly focused on the body, and disassociate it from the voice. Our voice is the movement of our spirit into life and our connection to others and certainly deserves to be preserved, and when necessary, strengthened.

    Mary Spremulli,MA,CCC-SLP
    Voice Aerobics, LLC

  2. Well said. You never cease to amaze me. You know just the words that captures the essence of thought on every subject and this was particularly the case here. We should not take for granted our voices because our relationships depend so much on our ability to communicate clearly.

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