There Are Such Things As Miracles–PART 1

 Life on many levels can be difficult and challenging, whether one has Parkinson’s disease (PD) or not.  The added challenge of PD only accentuates the necessity of taking better care of oneself.  It is when we neglect ourselves or fail to listen to the cues presented by those around us that we miss important and even life-changing  messages that need addressing.

The older I get, the more I am beginning to believe that things happen in life for a reason. My belief is that somewhere in the happening  there is a nugget of wisdom to be mined. There may be an appearance  of  randomness  to our lives but in reality there really is true order.  Coincidences  are often messages  of unfinished business  that may need to be addressed.

Several years ago, a friend put me in touch with a Speech Language Pathologist, named Samantha Elandary.  Samantha founded what is now the Parkinson Voice Project, in Dallas, Texas, formerly the Texas Voice Project.  When I had returned from Dallas almost 7 years ago, I found my voice had improved from just a few days of therapy.  Time passed,  and this year I ran into Samantha twice at 2 different Parkinson’s events.  At the second event, she told me about how her voice program had evolved and she invited me to Dallas to see and experience the power of her voice program. As one who is fluently challenged, at times and speaks publicly, I accepted her offer to improve my speech,  fluency, and loudness.

I have been accused of being hyperbolic with my words on several occasions but what I saw for others as well as myself is nothing short of miraculous. People with PD and soft or weak voices were regaining their lost voice.  How easily we discount the importance of voice, inflection,  and the self-esteem that is attached to being heard and understood.  The Parkinson Voice Project is fighting to help people with PD regain and maintain their identity and their voice.

What I saw for myself was an increase in volume, improved clarity, and a fluency that I had not seen for years.  I saw people in the Parkinson Voice Project center smile with pride as their voice came back and tears of joy from their care-partner  because now their spouse could be heard. The old saying that you don’t know what you’ve got until it’s gone is true, especially in this case and for many of us if we don’t pay close attention we won’t realize that something needs fixing. For me, I am so grateful to hear such a dramatic change in my speech. I can also speak for my wife that she is so happy not to ask me to repeat myself.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on November 6, 2011, in Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 3 Comments.

  1. Amen!! When one has bodily changes from a movement disorder, it is easy to get focused and at times overly focused on the body, and disassociate it from the voice. Our voice is the movement of our spirit into life and our connection to others and certainly deserves to be preserved, and when necessary, strengthened.

    Mary Spremulli,MA,CCC-SLP
    Voice Aerobics, LLC

  2. Well said. You never cease to amaze me. You know just the words that captures the essence of thought on every subject and this was particularly the case here. We should not take for granted our voices because our relationships depend so much on our ability to communicate clearly.

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: