Monthly Archives: January 2012

8 Tips That Could Save A Parkinson’s Disease Patient’s Life (or at least reduce severe injury)

1. Take the elevator and not the escalator! If you have balance issues, a hard dramatic fall is the last thing that you need to deal with–especially if you can avoid it.

2. It can be very easy to forget your meds or even take a double dose if you aren’t vigilant about your dosing. Keep a journal or daily dosing sheet.

3. St. John’s Wort, Kava kava,  and cold medicine products like, Dextromethorphan (contained in many over-the-counter cough medicines), may have severe side-effects. Check your packaging and the Web. This is not a medical website, so go to a medical site like for the details. Read  your labels –especially on cold medicines.

4. Giving up the car keys is one of the hardest decisions that you will ever have to make! You don’t want to harm yourself but even more, you don’t want to hurt someone else. Be smart about when it is time to seek alternative transportation. It isn’t easy,  but you might just be saving many lives by relinquishing those keys! (See #8)

5. Stay out of the hospital as much as possible. If you have to–well—then you have to–but if you are choosing cosmetic surgery or any kind of surgery that isn’t totally necessary, consider avoiding the risk of the blade and anesthesia. Don’t tax your system more than you have to.

6. Limit your sun exposure, especially if you are on Parkinson’s meds. Eat your organic leafy greens to get your vitamin D and even dairy, but not too much direct sun–or dairy.

7. Monitor your stress, blood pressure, and sleep. They can all be related. Diet may play a factor as well. If you don’t have a home blood pressure monitor, you might consider picking one up on the web or your local drugstore. If you track it a few weeks before your next doctor visit, you can compare yours with the doctor’s reading.

8. In some States, telemedicine (doctor visits by Skype or camera/video programs) is becoming a reality that saves time, money, and travel. Ask your physician, Neurologist, or even local hospital if they have any kind of program that might work for you to be seen without being seen in the office.

Hey–I am Not a doctor (not that the money wouldn’t be nice and boy would my parents be proud). I’m just a guy with PD and a blog. If you like it, please share it with a friend. If you don’t like it, please share it with 2 or more friends.

This is not professional medical advice–it is my opinion from living with PD for over 25 years. Thanks for reading!  Join me on Twitter @asoftvoicepd

Use Energy Wisely

“Never waste energy or worries on negative thoughts.” This is a quote from Bruce Lee, Kung Fu Master and film legend. 

When one applies this quote to Parkinson’s Disease or any illness, while it may sound profound and insightful at first, how does one with an illness, do anything but worry?  To worry about our future is pure human nature. Some worry may be considered practical if the worry is over a factor that can be altered or changed by some reasonable means. If there is worry for a problem or issue beyond one’s ability and there is nothing that can be done, then worry is nothing but detrimental to mind and body.

Don’t ever get the sense that there are no options or alternatives. Windows open when doors shut.  There may not be a key to every lock that we encounter, but we owe it to ourselves to make as many options available to ourselves as possible. Taking a fresh perspective on a problem can create new opportunities that we may have missed or overlooked.

Healing begins in the mind.  We become what we believe.  The body has a will that may take control at times but it does not operate totally by itself. If we are able to ease the worries that burden the mind, the tension on the body should be relieved from the damaging thoughts.

Fending Off Crisis

Since the invention of life, it has all been about preserving it, healing it, living it, and  bettering it. How we do all or any of the four components,  can take a complete lifetime or more of learning. Life would be so complete and easy if there weren’t those nasty and annoying bumps, tragedies, and crisis–right?Maybe not.

Heartache,  pain, and suffering are among life’s lowest trips in the human experience.  Sometimes, how we deal with an unexpected blow is just as important and vital as the blow itself.  One’s initial reaction to most stimuli is panic, adrenalin rush,  and to act out of desperation.  If we are able to process our mind and heart in a cohesive manner, working together, we  would know how to get through the toughest of times. When your head and heart work in conjunction, it just feels right. Maybe, one can attain true peace and fend off crisis with this harmonic balance of mind and body. 

Finding balance in any part of our lives is difficult and takes dedication.  Sometimes it takes sacrifice. Sometimes those tragedies become painful but valuable teaching aids that stick with us the rest of our life.

5 Reasons Why My Cat and Dog Must Be Alien Life Forms!

 Here’s a little piece I wrote that I hope will make you smile,  giggle:, or brighten your day:

1. Cutting Contact from the Outside World–They hoard my attention and refuse to allow me to contact or interact with other humans!

2. Populating My House and Space- Both life forms are molting a coat for what I think will soon be a duplicate or multiple of the original form–it must be replicating! I keep finding hair everywhere!

3. World Domination- Slowly, they are intentionally draining my resources (and nerves) in hopes that I will run out of patience and  money!

4. Mind Control- They constantly remind me of the same thing over and over: they remind me to feed them, they remind me to pay attention to them, they remind me to brush them, they remind me to  let them out–help!

5. Defiance-They live in my house and I am just lucky that they don’t throw me out–because they don’t hear a thing I say or do a thing I ask!

On Freddie Roach Airs January 20th!

Starting  January 20,2012, HBO Sports presents the first episode of a 6 part series called On Freddie Roach. If you don’t know boxing or Parkinson’s Disease, Freddie Roach is a successful  former  lightweight boxer and one of the greatest trainers  of all-time. Roach has trained  Mike Tyson, Oscar De La Hoya, and Manny Pacquiao, just to name a few. 28 of his boxers  have become world champions.

A few years ago, Roach was diagnosed with PD, but it hasn’t slowed him down and he continues  to keep his bevy of fighters winning. He is a force of determination, drive, and inspiration.  

I can’t wait! Thank you, HBO!  

Here is a recent New York Times interview with Mr. Roach.

Just Let It Go!

It’s what you tell yourself when a thought or emotion comes up when meditating: “Just let it go!” Sure, saying it and the actuality of doing it is different but, it becomes reality, the more you do it. Meditation and the acknowledgement of letting go is a practice, and it is the benefit of  that practice that comes with the practice. So often in our lives, we are asked to let go, be it at the loss of a loved one, the breaking of a promise,  an unkind act, the releasing of a dream, resentment or guilt, or some deep seeded emotion or thought.  

Letting go takes practice, discipline, and intuition.  It takes timing. Knowing  what to keep and what to release  sometimes take a leap of faith into the unknown. It requires bravery and will.

In this New Year, whether you hope to shed pounds, bad habits, clutter in your life, or just the old of 2011, remember to let go of what you don’t need or just doesn’t benefit you. That’s what I’m hoping to do.

Happy New Year!

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