8 Tips That Could Save A Parkinson’s Disease Patient’s Life (or at least reduce severe injury)

1. Take the elevator and not the escalator! If you have balance issues, a hard dramatic fall is the last thing that you need to deal with–especially if you can avoid it.

2. It can be very easy to forget your meds or even take a double dose if you aren’t vigilant about your dosing. Keep a journal or daily dosing sheet.

3. St. John’s Wort, Kava kava,  and cold medicine products like, Dextromethorphan (contained in many over-the-counter cough medicines), may have severe side-effects. Check your packaging and the Web. This is not a medical website, so go to a medical site like www.webmd.com for the details. Read  your labels –especially on cold medicines.

4. Giving up the car keys is one of the hardest decisions that you will ever have to make! You don’t want to harm yourself but even more, you don’t want to hurt someone else. Be smart about when it is time to seek alternative transportation. It isn’t easy,  but you might just be saving many lives by relinquishing those keys! (See #8)

5. Stay out of the hospital as much as possible. If you have to–well—then you have to–but if you are choosing cosmetic surgery or any kind of surgery that isn’t totally necessary, consider avoiding the risk of the blade and anesthesia. Don’t tax your system more than you have to.

6. Limit your sun exposure, especially if you are on Parkinson’s meds. Eat your organic leafy greens to get your vitamin D and even dairy, but not too much direct sun–or dairy.

7. Monitor your stress, blood pressure, and sleep. They can all be related. Diet may play a factor as well. If you don’t have a home blood pressure monitor, you might consider picking one up on the web or your local drugstore. If you track it a few weeks before your next doctor visit, you can compare yours with the doctor’s reading.

8. In some States, telemedicine (doctor visits by Skype or camera/video programs) is becoming a reality that saves time, money, and travel. Ask your physician, Neurologist, or even local hospital if they have any kind of program that might work for you to be seen without being seen in the office.

Hey–I am Not a doctor (not that the money wouldn’t be nice and boy would my parents be proud). I’m just a guy with PD and a blog. If you like it, please share it with a friend. If you don’t like it, please share it with 2 or more friends.

This is not professional medical advice–it is my opinion from living with PD for over 25 years. Thanks for reading!  Join me on Twitter @asoftvoicepd

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on January 30, 2012, in Uncategorized and tagged , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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