The Davis Phinney Richmond, VA Victory Summit – A Success!

Last Saturday, I had the privilege to attend and share some of what I have learned in my living with Parkinson’s disease for over 25 years. The Davis Phinney Foundation’s Victory Summit in Richmond, Virginia brought  together 500 or more people with Parkinson’s disease, their carepartners, and medical experts from around the nation to discuss research and how to live better with this illness. The Event, both inspiring and educational, felt more like a close-knit family and less of a conference event. Having attended many Parkinson’s related events over my many years with this disease, I can tell you that the Phinney Victory Summit is a truly empowering and uplifting experience that educates and inspires its’ attendees. I highly suggest that if you or someone you love has Parkinson’s, that you look into coming to the next one.

The next Summit is in Pittsburgh on September 15, 2012. For more information, go to www.davisphinneyfoundation.org.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN). In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master. Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations. You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd. I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog. I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

Posted on May 21, 2012, in Education & Support, Health, Media & Trends, Parkinson's Disease, Philosophy, Uncategorized and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. I had quite a different take on the victory summit I attended in Phoenix. I’m newer to this than you and hope to be as settled as you seem to be. I’m almost 39 and was diagnosed two years ago after more than 5 years of a symptom goose chase. I vacillate between anger, acceptance, self pity and optimism. I’d appreciate any thoughts you have to share.

    http://strong-but-shaken.blogspot.com/2013/01/davis-phinney-is-good-guy.html

    Thanks,
    Maureen

    • Hi Maureen,

      I totally understand those feelings. Some of the emotions that you list probably won’t help in accepting. I think once you accept your PD that is when you can best able to search for the tools to overcome it. I think that if change the way we look at ourselves and make some changes in our stress levels, we will see progress. I am Not trying to sell you my book (A Soft Voice In A Noisy World) but you can read the first 6 chapters for free on Smashwords.com, and it may help. My site has a few articles that may help. You can email me at asoftvoice@gmail.com if you don’t want future discussion shared with my readers. I wish you the best in your path to health and healing. Thanks! Karl

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