The Davis Phinney Richmond, VA Victory Summit – A Success!

Last Saturday, I had the privilege to attend and share some of what I have learned in my living with Parkinson’s disease for over 25 years. The Davis Phinney Foundation’s Victory Summit in Richmond, Virginia brought  together 500 or more people with Parkinson’s disease, their carepartners, and medical experts from around the nation to discuss research and how to live better with this illness. The Event, both inspiring and educational, felt more like a close-knit family and less of a conference event. Having attended many Parkinson’s related events over my many years with this disease, I can tell you that the Phinney Victory Summit is a truly empowering and uplifting experience that educates and inspires its’ attendees. I highly suggest that if you or someone you love has Parkinson’s, that you look into coming to the next one.

The next Summit is in Pittsburgh on September 15, 2012. For more information, go to www.davisphinneyfoundation.org.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on May 21, 2012, in Education & Support, Health, Media & Trends, Parkinson's Disease, Philosophy, Uncategorized and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. I had quite a different take on the victory summit I attended in Phoenix. I’m newer to this than you and hope to be as settled as you seem to be. I’m almost 39 and was diagnosed two years ago after more than 5 years of a symptom goose chase. I vacillate between anger, acceptance, self pity and optimism. I’d appreciate any thoughts you have to share.

    http://strong-but-shaken.blogspot.com/2013/01/davis-phinney-is-good-guy.html

    Thanks,
    Maureen

    • Hi Maureen,

      I totally understand those feelings. Some of the emotions that you list probably won’t help in accepting. I think once you accept your PD that is when you can best able to search for the tools to overcome it. I think that if change the way we look at ourselves and make some changes in our stress levels, we will see progress. I am Not trying to sell you my book (A Soft Voice In A Noisy World) but you can read the first 6 chapters for free on Smashwords.com, and it may help. My site has a few articles that may help. You can email me at asoftvoice@gmail.com if you don’t want future discussion shared with my readers. I wish you the best in your path to health and healing. Thanks! Karl

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