Adapting

I am 45 years old and have probably had Parkinson’s Disease since I was 17. I have had plenty of time to study this illness and put it in perspective. I would be lying if I were to say “PD doesn’t change your life”. Sure, it changes your plans, but it doesn’t have to ruin it.

I meet hundreds of people with PD a year. Most young onset patients accept that their lives must change and that they need to find good medical care. Many of the older newly diagnosed patients tell me how they had plans and now those plans have changed.

Nothing in our lives is for certain. Whether you are healthy or not, the one certainty is that things change. Plans change. The more flexible we are, the easier it is to adapt to change.  As much as we would like to believe that we are in control of our lives, circumstances outside of our control come about and we are once again forced to adapt.

Adapting does not mean you stop growing and learning. Transition is a natural process that we need not fight. Taking on this transition with a thirst for knowledge and a desire to improve oneself in mind, body, and spirit, will serve you well.

Try weeding out the stressors in your life that deter from your peace of mind. There are negative interruptions that bombard our minds, be it billboards, emails, talk radio, television news, or other distractions that upset our calm. Today, try limiting some of these outside influences and see what happens.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com. His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015! Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2018 and 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN). In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master. Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations. You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd. I’m available for speaking engagements to share my experience living with Parkinson’s disease. Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog. I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

Posted on June 13, 2012, in Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. Love reading your posts! Your insight is great whether you happen to have PD or not. My Grandfather died age 42 from PD of 3 yr duration. My Aunts both had narcolepsy/ One very mild the other from the time she was a child. She also had cataplexy. I noticed she later had some PD symptoms though never dx w/ it. Seems pd and narcolepsy kind of intertwine sooner or later. Any experiences with that? I’m doing research et it seems that there is a correlation and that narcolepsy may even be an autoimmune disease. Regards,. Mary

    • Thanks, Mary! I am fortunate that I still am able to sleep at 6 hours a night and don’t nod off in the day. Thank you so much for reading this and sharing your story! Karl

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