Adapting

I am 45 years old and have probably had Parkinson’s Disease since I was 17. I have had plenty of time to study this illness and put it in perspective. I would be lying if I were to say “PD doesn’t change your life”. Sure, it changes your plans, but it doesn’t have to ruin it.

I meet hundreds of people with PD a year. Most young onset patients accept that their lives must change and that they need to find good medical care. Many of the older newly diagnosed patients tell me how they had plans and now those plans have changed.

Nothing in our lives is for certain. Whether you are healthy or not, the one certainty is that things change. Plans change. The more flexible we are, the easier it is to adapt to change.  As much as we would like to believe that we are in control of our lives, circumstances outside of our control come about and we are once again forced to adapt.

Adapting does not mean you stop growing and learning. Transition is a natural process that we need not fight. Taking on this transition with a thirst for knowledge and a desire to improve oneself in mind, body, and spirit, will serve you well.

Try weeding out the stressors in your life that deter from your peace of mind. There are negative interruptions that bombard our minds, be it billboards, emails, talk radio, television news, or other distractions that upset our calm. Today, try limiting some of these outside influences and see what happens.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on June 13, 2012, in Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. Love reading your posts! Your insight is great whether you happen to have PD or not. My Grandfather died age 42 from PD of 3 yr duration. My Aunts both had narcolepsy/ One very mild the other from the time she was a child. She also had cataplexy. I noticed she later had some PD symptoms though never dx w/ it. Seems pd and narcolepsy kind of intertwine sooner or later. Any experiences with that? I’m doing research et it seems that there is a correlation and that narcolepsy may even be an autoimmune disease. Regards,. Mary

    • Thanks, Mary! I am fortunate that I still am able to sleep at 6 hours a night and don’t nod off in the day. Thank you so much for reading this and sharing your story! Karl

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