Monthly Archives: October 2014
I am quickly nearing the age of 50. To many of you reading this, 50 isn’t old. I don’t consider 50 old either, but I have had Parkinson’s disease since age 17, and that means I’ve had it for a long time.
When I was given my diagnosis at the age of 23, I was told by several people in the PD community that I would see a cure in 5 or at least 10 years. A quarter of a century later, I didn’t expect a cure but I had hoped science had developed better drugs, therapies, and that hospitals and retirement homes would have better understandings of how to care for people with this disease.
What is it going to take for the world to understand Parkinson’s disease? What is it going to take to develop new drugs with fewer side-effects? What is it going to take to get Parkinson’s disease seen as an illness that needs assistance, right NOW!
This Sunday marks the first Partners in Parkinson’s event in Washington DC. The event is a full day of education on living with Parkinson’s and learning about resources in the DC/VA/MD/DE/WV area. I encourage you to come and be a part of this free event. Wednesday 10/8 at 12 pm is the deadline for registering online. You can register as a walk up on the day of the event.
As part of the Partners in Parkinson’s event, there will be a Resource fair that includes representatives from universities that have Parkinson’s programs, local and regional support and exercise groups, vendors who provide services to our community and many more community resources. It’s a great opportunity to meet with the staffs of these organizations and network.
You also have the opportunity to hear from those living with Parkinson’s, their carepartners, and allied health professionals who work with the PD community.
Register online and find out more at: https://www.partnersinparkinsons.org/attend-an-event. There are also upcoming Partners in Parkinson’s events in Philadelphia, Chicago, Denver and Los Angeles before the end of 2014.
P.S. Read my September blog posting discussing other upcoming PD Educational Events this fall.