No Holiday For Parkinson’s Awareness

PD Tulip

PD Tulip

April has been proclaimed to be Parkinson’s Awareness Month, but just how aware are we really of Parkinson’s disease?

Those of us living with the illness as well as our care partners, caregivers, and close relatives, are all well aware of the physical, the mental, and the spiritual toll that Parkinson’s can take.  Unless you live with the disease on a daily basis, it is difficult to comprehend the wide range of symptoms, drug side-effects, and varying degrees of overall health issues that are truly Parkinson’s related—but I ask, how much real awareness is there of this disease?

Just getting a diagnosis with Parkinson’s can be an arduous endeavor.  The journey with Parkinson’s is riddled with unknowns that neither scientists nor neurologists can explain, at this time.  Dedication to unraveling the mystery of our gray matter is crucial to ending all neurological disorders.

In 2017, the bicentennial of James Parkinson’s observations and discoveries will be recognized. If you look at the landscape of successes in battling this illness, for all the time, money, and attempts at awareness, there is so much need that is left unmet. After all this time, there is still so little known about this elusive condition.

Maybe, spreading awareness and information, when at all possible is a key.  Consider sharing your story with the uninitiated and those who are unfamiliar with Parkinson’s, for this offers an opportunity to demystify an illness that is so unique for each individual. Let’s not limit Parkinson’s awareness to just 30 days!

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on April 8, 2015, in Education, Education & Support, Health, Media & Trends, Parkinson's Disease, Philosophy, Politics, Wellness and tagged , , , , , , , , , , , , , , . Bookmark the permalink. 1 Comment.

  1. Very good question, and a much gentler answer than my post about James Parkinson. This disease is ruthless – takes no prisoners and never stops. Many thanks Karl – I so wish you health!
    https://www.linkedin.com/pulse/work-together-cure-parkinsons-lisa-vanderburg?trk=hb_ntf_MEGAPHONE_ARTICLE_COMMENT

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