Missing

Missing

Missing

The support group that my wife and I have run for over 10 years has come to an end. I have witnessed the fluctuations in attendance and noticed the absentees. Sure, some weren’t ready for the group, some didn’t like the format of the group, while others found the location or time to be inconvenient, transportation could have been a problem, Parkinson’s symptoms may have gotten in the way, or they weren’t wild about the group leaders. I wonder and worry about all those I meet, befriend, and then go missing. Sadly, this happens in Parkinson’s disease.

I recently found out an old friend I had met in 2004 is now bound to a wheelchair and in a nursing home. If you read my blog, I am a positive person but I see far too many friends disappearing from our community. As these voices go silent, it becomes easier for them to go missing.

There is no shame in having Parkinson’s. This illness alienates and devastates friendships and relationships, if not closely monitored and preserved. Often, depression and/or apathy play a part. Whatever the case may be, Parkinson’s patients tend to slowly fade from the crowd and it just shouldn’t be that way.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on June 22, 2015, in Education, Education & Support, Health, Parkinson's Disease, Philosophy, Wellness and tagged , , , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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