Monthly Archives: June 2016

Taking Flight!

Taking flight!

Taking flight!

It is far easier to succumb to the will of gravity and fall than it is to fly. Flight takes practice, focus, precision, concentration, and fearlessness. There is only one way up and one way down, but getting up rarely is as fast as the way down. We all fall down, it is the determination in getting back up that matters.
Today, the clouds and winds may not be accommodating for flight, but the winds may shift and the clouds will part for you to try again to take your place among

the birds.

The Power of Calm

Peace and tranquility!

Peace and tranquility!

Seeking peace and serenity can only add to your health.

The more that we know about what brings us peace and calmness, the closer we are to finding balance.

Stop Bickering and Do Something!

DC

DC

When you live in or very near our nation’s Capital, Washington, DC, American national news becomes your local news. The constant bombardment of fighting and badmouthing gets overwhelming. How do two parties, both made up of flesh and blood, elected to oversee, govern, and protect millions of fellow humans also made up of flesh and blood who are in a position to help so many and capable of making life better for others, so dormant and implacable? Time is of the essence.
Since 1995, almost every year since, I have consistently pleaded with my representatives about increasing the funding for more Parkinson’s disease research for the National Institutes for Health (NIH), implementing telemedicine, expanding better and faster drugs and devices, and made a loud cry for the importance of creating a national data collection system for neurological diseases. There were moments of fleeting successes, scattered over the years, but our current Congress shows little signs of budging, even on issues that could save immediate lives. This is about real people in need.

If the current estimate of 60,000 people are diagnosed with PD every year is nearly accurate, it is probable that many patients are either misdiagnosed or not at all. It took me 6 years and 9 doctors to get my diagnosis. I know many others who faced the same journey to a diagnosis.
No one should be forced to be faced with the decision to either afford groceries or their medications. No one should be homeless with Parkinson’s disease. Something is terribly wrong when it has come to this.

Whether one has an illness or not, for the betterment of the country as a whole and all those seeking progress, compromise must be acted, immediately.

Travel Time!

Some travel tips!

Some travel tips!

 

 

Where are you going, what are you doing, how will you get there? Slow it down. You’ll get there–when you get there.

Travelling with or without an illness these days can and often will try your patience, up your stress level, and test your sanity. Taking on the travel challenge might just be a little more peaceful and serene if you follow some of these tips:

1) If you are flying or are forced to be at a determined destination like a train or bus station, allow yourself even an extra hour of time to avoid the feeling of being rushed or stressed. The more self-induced pressure that you add to the event, the more energy you waste, and in a crowded airport, we all need to conserve our energy.

2) When we travel, it is easy to get distracted and lose focus. Deep breathing and meditation may help you keep on track and stay sharp. Something as simple as using an app like, Headspace, or sitting quietly and gathering your thoughts for a few moments a day, may improve concentration.

3) Make a special travel CD or playlist of of music that you look forward to hearing either in the car or once you get to the plane.

Some planning ahead and staying flexible can go a long way in your travels.

Check out my past postings in my archive, on travel tips for more ideas.

 

 

Shoes, Coffee, Advocacy, and WPC 2016

First thing:

I am NOT a paid sponsor nor have I been compensated for these comments:

I guess you could call this a “footnote”–okay, bad joke, but I think some of you with foot problems and balance issues, might just find benefit in trying these shoes. They are the cost of a good running shoe and they have a return policy if the shoes don’t work out: My only mention of these shoes here is because I have found them to be so comfortable–period. My wife and I recently discovered these

Comfort and Stability

Comfort and Stability

running shoes made to accommodate for more space for a wider foot. We each got a pair–she loves that her heel doesn’t hurt and I love the comfort and flexibility that it allows my toes. I can say that these are the most comfortable shoes that I own!  I just think this product should be known. I haven’t sold out and I won’t sell out. I will only share products that I use, find great benefit, and feel that they may have a positive impact on your life. The shoes came from altrarunning.com.

Second Thing:

I want  to commend my friend, Sonia Gow on organizing her first Parkinson’s Cafe! Her event was a smashing success as over 50 people in the Fairfax, VA,  area attended. The event was like a free-flowing support group and a great opportunity to share and catch up with friends. We are so lucky to have Sonia’s passion and vision for helping the Parkinson’s community so close by. Check out her site at  www.parkinsoncafenetwork.org. to learn more.

Third Thing:

My friend Jean Burns is bringing awareness to some very important concerns involving clinical trial participant and hospital policies. After you have read this, share it with friends and family. This is an eye-opener. Here is the article in US News World Report.

Fourth Thing:

The 2016 World Parkinson Congress registration deadline for discount is nearing (July 5), so register soon. Don’t forget about visiting the author Book Nook and Wellness Way while you are in Portland, Oregon. This event only happens every 3 years and as an international event in North America, this is a great opportunity to learn from doctors, researchers, practitioners, and patients across the globe. This is a wonderful opportunity to meet and learn  from neurological experts from all over the world. Go to WPC2016.org to learn more.

ASoftVoice.com Recognized as One of the Best Parkinson’s Disease Blogs.

Healthline.com- Best 15 Parkinson's Disease Blogs of 2016

Healthline.com- Best 15 Parkinson’s Disease Blogs of 2016

I am so grateful to all my readers, followers, subscribers, fellow bloggers, and the editors at Healthline.com who selected this blog, once again, as one of the top 15 Parkinson’s disease related blogs for 2016. I am so honored and humbled to be listed with such a talented collection of bloggers and writers. I congratulate you all on your work being recognized and appreciated by Healthline.com.

Thank you for this honor! I greatly appreciate this accolade and I look forward to attempting new ways to entertain, inspire, and inform you.

Be Well!

Karl

A Farewell to Ali

He is an will be missed!

He is and will be missed!

I never met the man but just knowing that he was there meant something. He meant so much to so many in countless genres. He fought the ultimate fight with a quiet grace after making lasting marks  that thus changed and broke open multiple conversations that would span the globe.

His body may have moved on but his presence and impact will live as long as humankind continues to exist. He fought a long battle with an opponent that plays by no rules. Unlike boxing, with illness there is no telling when to block or duck from such a blow. His path and fame has opened many doors and paved many roads that have helped to shed light on the importance and expediency of the need to aid those trying to navigate Parkinson’s disease.  We have lost a great friend to our community and a humanitarian to the world.

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