Something to consider for National Caregivers’ Month!

PD Tulip!

PD Tulip!

It’s National Caregivers’ Month–in honor, I am recycling one of my oldie but goodies! I hope it helps! This is a gentle reminder to all the selfless caregivers (I prefer the term carepartner), carepartners, doctors, nurses, orderlies, therapists, speech pathologists, social workers, and anyone who comes in contact with people touched by a neurological illness. Remember these 5 important points before you react, speak, take offense, lose your temper, or give up:

Everyone has a history and a story. The person who you are dealing with now has had and may still have a very full life that you only see a portion. Give them the credit and respect that they are due.

-The current state of the patient that you are seeing doesn’t need more stress, tension, or conflict in their lives, working together you both can make life better for the patient– and not worse.

-Give your loved one or patient flexibility and deal with them creatively and with an open mind. If they aren’t responding to medications, offer music therapy, complementary therapies, or seek a personal solution which motivates the patient. There is a need for gentleness and understanding.
-The person with whom you are interacting may have done some important things in their life: raised a family, changed many lives, and been far more active than they are now. Their current condition is not by choice. Show compassion, patience, caring, and generosity. Remaining centered, patient, and mindful is good for both patient and carepartner.

-A mutual respect and understanding is crucial for needs to be met and for the caregiver/carepartner to be appreciated.
-Someday, in the not so distant future, you or someone who you care deeply for, could be facing health challenges.

About Karl Robb

Karl Robb has had Parkinson’s disease (PD) for over twenty-five years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now fifty, he is a Parkinson advocate, entrepreneur, inventor, writer, blogger, photographer, Reiki Master, and speaker on PD issues. Karl is the author of the book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has been chosen as a blogger partner for the 4th World Parkinson Congress being held this September in Portland, Oregon. He has a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations. Karl is a former board member and a Virginia assistant state director of the Parkinson’s Action Network and a board member of the Parkinson Voice Project. You may reach Karl via email at asoftvoice@gmail.com, visit his blog at www.asoftvoice.com, on Facebook, or contact him via Twitter @asoftvoicepd.

Posted on November 14, 2016, in Education, Education & Support, Health, Parkinson's Disease, Philosophy and tagged , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: