About Me

Author Karl Robb

Photo by Erick Gibson – http://www.erickgibson.com

Karl Robb has had Parkinson’s disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-one, he is a Parkinson’s disease advocate, an entrepreneur, an inventor, an author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease and Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and care partner, Angela Robb. He has blogged for ten years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net and is a contributor to PatientsLikeMe.com.

His blog, ASoftVoice.com, has been recognized four years in a row by Healthline.com as one of The Best Parkinson’s Blogs of 2018, 2017, 2016, and 2015!  Healthline.com also listed the book A Soft Voice in a Noisy World in their list of Best Parkinson’s Disease Books of 2017! FeedSpot.com has recognized ASoftVoice.com for 2017 as a Top 50 Parkinson’s Disease blog. Karl was a blogger for the 2016 World Parkinson Congress in Portland, Oregon. He is a frequent speaker on Parkinson’s disease issues as well as an experienced advocate for Parkinson’s issues throughout the United States. He is also an advisor and consultant on Parkinson’s disease.

Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network based in Virginia. He was an active board member (6 years) and an advocate (18 years) with the Parkinson’s Action Network (PAN).

In his free time, he is a photographer, constant writer, longtime magician, and a practicing Reiki Jin Kei Do master.

Karl received a Bachelor of Arts degree in English from the University of North Carolina at Chapel Hill. He has been featured by The New York Post, BBC Radio, CBS News, National Public Broadcasting (NPR), in The New Republic magazine and NHK World Television, as well as several Washington, D.C., television stations.

You may reach Karl via email at asoftvoice@gmail.com, on Facebook, or contact him via Twitter @asoftvoicepd.

I’m available for speaking engagements to share my experience living with Parkinson’s disease.  Please contact me at asoftvoice@gmail.com if you are interested in having me speak to your group, conference/symposium, or would like me to write an article for your newsletter or blog.

 I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.

  1. Hi Karl
    Just wanted to say I love your blog and bravo for your work…..If yours is a quiet voice in the noise mine is I think a genuinely well meaning but fiercesomely determined and opinionated one! However we are all about achieving the same end and that I believe is the improvement of life for those, especially people living with disruptive conditions. So from a stunning Scotland my absolute best to you. Kindest Colleen

  2. Thank you, Colleen, for your kind and thoughtful words. This means a great deal to me.
    Karl

  3. I love the title of your blog~thanks for your positive outlook!

  4. Karl, I found your blog on PD on wordpress sites. My blog is wellness and fitness related. I am a practicing Physical Therapist in southern CA. I will continue to follow your site, and pass on to my brother. He is 47yo recently Dx with PD. Thanks, and have a Great Thanksgiving. Randy Bauer

  5. Karl, A special thanks to you and the VCU Parkinson’s Disease and Movement Disorders Center for including you and your work in the Center’s
    electronic communications. Optimism, exercise and life purpose(s) seem to me, a “young at heart” 71 year old male, to be important factors in living with PD and continuing to be a positive force in this old world!

  6. Dear Karl,
    I am 41 years old and diagnosed with parkinson 10 days ago. I started to blog about my disease in Turkish. I think that I am the only Turkish blogger about parkinson. You did great job. parkinsonlahayat.blogspot.com is the address of my blog.
    Ozgur Cosar

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