Category Archives: Dealing and Healing Workbook

Building a Plan for Your Parkinson’s Disease and Your Health

Without some sort of plan or framework, it is very easy to get lost along the way. Whether you have Parkinson’s disease or not, just having goals may not be enough, as unexpected obstacles can arise at the most inconvenient of times. There is so much in our lives that we can’t expect, but must just accept and move on, as best we can.  Our perspective and flexibility can impact how we deal with adversity.

The following few tips are some thoughts and suggestions that you may want to consider. I hope that these tips might trigger some revelations for you.

  1. Consider building a series of plans from your personal medical team, your support network, your health team (trainer, physical therapist, massage therapist, speech pathologist, etc.). Some of these networks may overlap and vary as your providers may change over time.

  2. Keeping current on developments and timely releases about your illness is not only empowering but beneficial to both you and those who you choose to enlighten.

  3. If you have early onset Parkinson’s disease, I strongly suggest for you to consider finding a Neurologist who is a Movement Disorder Specialist, as they have special training dedicated to this illness.

  4. Don’t compare or contrast your Parkinson’s to anyone else’s. We each have our own flavor of Parkinson’s and we each have our own unique journey.

  5. Timing our medications is a crucial component to making the most of our day. Maintaining and strictly adhering to a timely regimen where your medications can work at their best, takes experimentation and some trial and error.

  6. Try not thinking of illness of any kind as a war, a battle, or a win or loss. Consider illness as an obstacle or an obstruction that must be worked around. No one wins a war. War is dark and violent. Maybe, a new perspective towards illness can take some of the anxiety out of it.

  7. Explore the numerous therapies outside of western medicine to see if you can find one that offers benefit or relief. Get good referrals from friends and family.

  8. Keep an open mind to relinquishing some of the responsibility for the good of lowering your stress level and improving your mental health.

  9. Do what you can, while you can! Whether you are healthy or have illness in your life, consider that our control is limited.

  10. While there is definitive change in our lives and the options may vary or seem more limited, we must recognize that we have more strength and control than we realize.

The Magic in Magic!

The Magic isn’t gone, but it is fading fast. The art of magic will never die, but it may become blurred, as new technology replaces the beauty and purity of performance magic. Live magic is just that—it’s magical. When performed correctly and the magician has done his job, the participant feels that the impossible is, possible. Some magicians embarrass or make their audience feel stupidly duped. The magician is meant to impress but not to break the bond between audience and performer. Magic is for everyone: young or old, there is a place to appreciate the grace and fluidity of sleight-of-hand. One should appreciate the trickery of the eyes and misdirection. Cleverness is worth recognition!

The sad reality is that the neighborhood magic store has rapidly gone away for good, only to be replaced by the video game. This dying art has a long history, reaching back to ancient Egypt and possibly even longer. To lose the joy that this art has sprung on so many, and for so long truly is a tragedy, indeed.

I hope that as generations and technology continue to evolve, that the creative minds of those drawn to magic can continue to update and improve upon the wonders of magic. Magic can be reinvented and re-introduced to new audiences in novel ways as materials and new innovations appear.

Keep the Magic Alive!

I have written about the benefit of video games and Parkinson’s disease, but had a deficit of articles on the benefits of performing and practicing magic. I think that aside of the many years of enjoyment of entertaining myself and an occasional audience, magic has given me numerous gifts that I will quantify:

-Magic makes you think in order and organized linear steps.

-Magic forces the performer to communicate, socialize, and be more outgoing.

-Magic helps improve eye-hand coordination and joint flexibility.

-Magic is universal. Magic is entertaining. Magic is sheer fun.

-Magic doesn’t feel like therapy, but maybe it is!

Walt Disney is quoted to have said, “It is fun to do the impossible!” Magic is about making the impossible, possible, even if it’s just for a moment.

 

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My Holiday Card!

My card to you for these holidays,

Is one of appreciation, in so many ways,

My focus is Parkinson’s but I’ll try to write more,

My goal is to share insight and options to explore,

As the holidays near and you may take on more stress,

Be kind to yourself, and worry less on the mess,

Enjoy your family and your treasured friends,

Keep the spirit, long after the season ends,

Thank you for reading and joining my site,

To all of you readers, I wish you a goodnight!

Thank You!

Healing Becomes a Prime Time Show

Healing Becomes a Prime Time Show

The world is shifting faster and even more progressively to complementary medicine, than I would ever have imagined. While late-night television channel surfing, I found a program that appears to be both informative and comforting. This new show is on a channel that I rarely watch. Home to numerous reality and family related dramas, TLC is not a station that usually offers programming that thrills me. I will admit that this show really interests me.

I came across a new show called, The Healer. Let me say that as a Parkinson’s patient and a reiki master, I use the term “healer” very rarely and very carefully. I had to see what TLC was doing with someone who had the ego and gift of restoring one to health. To use the word “healer” takes on a serious responsibility.

Charlie, an Australian entrepreneur, has been using his “gift” for several years and seems to deliver results with varying success. Charlie admits that results may depend upon the malady and the severity of it. I respect that he takes his gift so seriously. He freely admits that some illnesses may not respond well to his energy work, while some may react better. I also like that he shares his gift at no charge.

Doctors on the show are amazed, without explanation, yet appear to be willing to make the mind-shift that energy work may have merit. They are witnesses of the inexplicable. The doctors don’t deny that after Charlie’s treatment, something substantial has just occurred for their patient. Skepticism is understandable from the medical community, but when they see results from complimentary therapies, they should be willing to acknowledge them. One of the biggest dilemmas facing energy workers and the medical community is that if they both worked together, the patient may very well see surprising new results and at minimal cost.

I have seen slightly over one episode so far. I am an energy worker. I find the delving and unveiling of energy work on prime time television as a huge leap in the right direction! Shows like this demystify and shed light on the benefits of touch. This television program helps to show that hands on work has much to offer. In the United States, patients are less likely to pursue energy workers. In my opinion, the reason that many doctor(s) discount or don’t understand the potential benefit of working with energy practitioners is that little to no research has been funded.

Not until seven years into my diagnosis of Parkinson’s disease, at the age of 32 was I introduced to Reiki. From day one, I went from skeptic to believer, immediately. After experiencing what I had so easily discounted, it turned out to be something life-changing. Reiki hasn’t healed me to where I am void of symptoms.  I do know, not scientifically, that Reiki has made my life considerably better, increased my quality of life, and slowed my Parkinson’s progression over these last 20 years!

10 Tips to Improving Your Life with Parkinson’s Disease and Other Health Conditions

10 Tips to Improving Your Life with Parkinson’s Disease and Other Health Conditions

Parkinson’s disease is an illness that may require varying strategies. It may take new and different tactics to work with the ever-evolving changes that may pop up over time. Here are a few pieces of advice to consider as they may help you as they have helped me:

10) Intake Matters – Consider everything that you put into your body. Stay hydrated! Eat as cleanly as you can (local organic fresh vegetables, balanced diet, pay attention to your nutrition) and going easy on processed foods. Try reducing and even eliminating soft drinks. Avoid artificial sweeteners! Diet and Parkinson’s disease seem to go together; which makes complete sense, as reams of research seem to point to the gut as a possible culprit for the illness. Since going vegetarian, by vastly reducing my soft drink intake, increasing my water consumption, and reducing my reliance on processed foods, I have noticed digestion and medication absorption both, seem to have improved.

9) Keeping Social and Well – Informed – Creating and maintaining a social life keeps you involved, knowledgeable, engaged, and active. A social network and/or a support group is an opportunity to connect with other like-minded individuals who are dealing with your condition. Sharing information together provides you with a resource for experience and wisdom from those who are living with illness as well as those who are caring for loved ones. Having a sounding-board of experienced people can be very helpful when trying to learn about medications, navigate local resources, find therapies, and share stories about your health care providers. Seek support!

8) Lowering Your Stress Level and Keeping Anxiety Down – There are techniques and complementary therapies like massage, yoga, meditation, Reiki, and Tai chi, which can reduce stress anxiety, and calm the mind; these are but a few of the many therapies that you might consider trying. Several of these therapies can help teach breathing techniques and ways to lower anxiety. Finding that balance of your mind, body, and spirit can have a significant impact on your health.

7) Special Doctor – If you have Parkinson’s disease or another kind of movement disorder, find a neurologist who is specially trained as a Movement Disorder Specialist. They have extra training and an understanding in neurological disorders.

6) Keeping Positive – A positive attitude is contagious. Making the choice of staying positive and identifying the good instead of the negative is important to create a healthy and conducive environment. Remember that you have a choice!

5) Gratitude – Hold on to your joy for life and the gratitude for all that is in your life! Appreciate what may seem like small things but really are not, is a good start. Medicine, doctors, clean water and air, a good meal, friends, family, and just being alive are all to be appreciated. Add the awe of a sunrise, a sunset, a good laugh, great conversation, and helping someone else, are all acts to be cherished.

4) Doing What You Can – Do as much as you can, while you can, and maximize your good days! Take advantage of everyday and make the most of them!

3) Be Heard – Get involved in your community through advocacy groups, local organizations, and share your voice about your journey with illness. Educate those around you about your illness and encourage friends and family to learn with you on how to improve the Parkinson’s community.

2) Do Something – If you are in denial, apathetic, or depressed, it may be very difficult to motivate yourself to do what you need to do. It may be helpful to seek help from a counselor or someone who understands depression. This may take small victories and small steps. It may take learning about the disease in small chunks. Know this, that everyone’s journey is different and that you can’t gauge one patient by another. The more proactive and motivated you are, the more prepared you will be. Being flexible and staying open to new opportunities can be very helpful.

1) You are Not Powerless – Realize that you are in the driver’s seat to your healthcare! You must be your own best advocate and make sure that you are doing your very best. Be proactive with conventional medicine, skeptical but open to other non-invasive therapies, and a willingness for change. A little hope and faith can go a long way!

I really do believe that we have the power to help ourselves. We have the power locked inside ourselves, we just need the right key to unlock it. I think it is up to us to find that key.

Book Review: Parkinson Voice Project

Dealing and Healing with Parkinson's Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

My many thanks  to my friends at the Parkinson Voice Project in Richardson, Texas for this generous review of our second book!

Book Review by LOUD Crowd® Member Carol Brandle

TITLE: Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook
for Body, Mind, and Spirit
BY: Angela and Karl Robb

Having a workbook to accompany the best-selling Parkinson’s book, A Soft Voice in a Noisy
World, provides an excellent wellness tool for individuals or group discussion. Questions in the
workbook are closely paired with chapters in the book. Additionally, some questions shine light
on new ideas, such as complementary therapies like Reiki, massage, acupuncture, and
reflexology.

Karl Robb brings the same positive attitude, hope, and strength to this workbook as to his
book, A Soft a Voice in a Noisy World. Exercises which reduce stress and reaffirm strength can be
done as individuals or in communication groups, such as The LOUD Crowd® groups at Parkinson
Voice Project. A caregiver or partner might use the questions to strike up meaningful
conversation with the affected person, whether Parkinson’s is the health concern, or some other
health conditions. Either format will help you balance the connection between mind, body, and
spirit.

It’s apparent that Angela and Robb write from a wealth of experience as they direct
questions to sensitive issues, such as “What are you willing to do to help yourself?” and creating
a timeline to improve communication with a health care provider. Angela was honored in 2015
as a White House Champion of Change in Parkinson’s Disease. She and Karl also author an award winning
blog, http://www.asoftvoice.com


Angela and I have been fans, friends, and Board members of the Parkinson Voice Project for several years. We encourage anyone unfamiliar with this organization to learn about the wonderful work that they do.

Positive Daily Living Sample Chapter from Dealing and Healing

The following PDF is an excerpt from our new book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit.

We are excited to provide this collection of exercises and tools that we believe can benefit most anyone! Whether you are an individual, a support group, a social group, or a small informal group, we encourage you to try these exercises and to share it with those who you feel may benefit from it.

If you like this chapter and would like to purchase the workbook, it’s available for purchase online at Amazon.com and BarnesandNoble.com.

Dealing and Healing Chapter 29 Positive Daily Living

Chapter 29 Positive Daily Living

Happy Spring!

Sometimes, this is how I feel!

I love Spring, and cannot wait for the weather to retreat! Spring means sun, warmth, and the rebirth of flora and fauna. Greenery galore and the eruption of color come with the season. It means more time outside to explore and take new photographs.

If you are having a less good day, here are a few ways to improve your day:

Aspire

Book, create, initiate, or invite someone or make a plan for something to look forward in the near and distant future. By having something to look forward to (no matter how small), you create a to do item that you can work towards. Maybe you want to see a favorite band in concert or go to your favorite ice cream parlor, you are making plans.

Don’t Hide

Keep social and active! Get out and share information and good times with others!

Get Some Sun-but be cautious

Almost all Parkinson’s disease patients are low in vitamin D. PD patients who take Levadopa may be more be sensitive to sunlight. I see a Dermatologist at least once a year and suggest that you see one at least for a once a year checkup.

Some days are better than others–just remember that tomorrow is another day!

In Reference To My Art (up above)

Allergies, neck pain/headache, morning slowness, sinus congestion, post nasal drip, and cough all may come with the pollen explosion that comes with this time of year. I tend to not drink enough water and keep hydrated. I’m trying to drink more water. Stay hydrated!

My Chocolate Lab, Lily, is quite a teacher!

If you are an animal lover, dog or cat person, intuitive, or just simply aware, these observations may not be as eye-opening as some of my epiphanies, but here are some of the observations, realized from living with Lily:

1. In her eyes, if I’m having a less good day, all she wants to do is be with me and make my day better.

2. Parkinson’s symptoms don’t disturb her. She loves me for who I am and what I am. I am part of her pack, no matter what.

3. When times are stressful or anxious, Lily is waiting in the wings with her ball or stuffed toy, to make me laugh or break the mood with a game of catch or fetch.

4. She reminds me not to take myself so seriously.

5. She reminds me that you can say an awful lot with just your eyes. Words are not always necessary to get your message across. 

I’m Back and Ready To Work–Lots of News to Come In the Near Future!

Well, I am back from a brief hiatus! I am excited to say that I have loads to blog about and share–as well as a few surprises, coming soon!

If you are in the Northern Virginia area, we would love for you to join Angela and me for our book signing at the Fair Oaks Barnes and Noble bookstore in Fairfax, Virginia on March 30, 2017 at 4:00 PM EDT! We would love to show you our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit! Hope that you can join us!

Thank you for reading my blog and your continued readership.There is much more in store–just you wait!

Thanks, Karl

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