Category Archives: living well
Be sure to attend the first live online Davis Phinney Foundation Victory Summit this Friday 8/10/18 at 10 AM PST or 1:00 PM EST! I have attended several of their summits and found them to be very educational and informative. Use this link to register today: https://www.davisphinneyfoundation.org/live-broadcast-registration/
This Saturday,8/11/18 join the Parkinson Voice Project for an online lecture from Sarah King, PT, DPT who will be discussing “How To Create Your Personalized Parkinson’s Plan of Attack“. Learn about this lecture and more speakers in their ongoing lecture series. The lecture begins at 10:30 AM Central Time or 11:30 AM Eastern Time. Here’s how to register and learn more about the lecture series: http://www.parkinsonvoiceproject.org/ShowContent.aspx?i=2141
This was created in May 2014, but I thought it was worthy of another appearance.
Here are some Tips for Staying Positive and Proactive:
Take care of yourself. The more you know about Parkinson’s, the better. You play the key role in your own health. Seek out therapies/modalities that work for you. Accepting your illness does not mean giving up.
Appreciate the good in every day. Focus on what you can do! Do not focus on what you can’t do! Savor and appreciate everything.
Stay flexible in all ways. A rigid pole often tends to break in the wind. A flexible pole will bend and give in the wind. Being more flexible will add a new dimension to your life.
A person with a good attitude is much easier to be around and is good for our well-being.
Being positive is a choice! When we label everything “good” or “bad”, we lose sight that we cannot savor one without the other. You cannot have the sweet without the bitter. This is life!
Explore the stressors in your daily life. Find an outlet to help you release your stress.
Procrastination, denial, fear, and apathy only delay the opportunity to begin our own self care. Don’t hesitate to ask for help when you need it.
If you don’t laugh every day, start! Laughter has all kinds of health benefits. Don’t take yourself too seriously. Don’t stop laughing!
Plan ahead for what you can and be aware and engaged. Always have a plan B, C, or more.
The best exercise or activity is the one that you like and you are willing to do. If Parkinson’s prohibits us from doing something we love, then we must find a replacement for that activity.
I hope these are helpful to you.
I recently joined a Rock Steady Boxing class! The class and the instructor are wonderful! If you have Parkinson’s disease and haven’t tried the Rock Steady Boxing program, I encourage you to find the nearest program in your area. The camaraderie and encouragement amongst the participants is uplifting and inspiring.
The workout is tough, lively, active, loud, motivating, and rewarding. I hate to admit it, but I am getting older. I’m rediscovering muscles that I have not used for a good while. For an hour and a half, the boxers either move through a series of exercise stations made up of quick thinking and moving games, flexibility or core exercises, many of them borrowed from yoga focusing on balance, strength, posture, and mobility. The program is flourishing, as it should. It’s novel, fresh, and effective! This program does something amazing—it makes working out fun again, for me.
Rock Steady Boxing NOVA has been an experience that I did not expect! The whole class has bonded and become a unified group. Everyone supports the other and encourages their fellow boxers. Our coach and leader, Alec, is a charismatic and inspired young man who really strives to make improvements in our class’s lives.
My first two classes, the workouts kicked my butt! I am happy to say that I can see an improvement in my strength, balance, and overall fitness. Rock Steady Boxing is a welcomed break in my day and week. I see the boxing as a moving meditation. It is a break that I look forward to, as well as seeing my boxing friends and putting on the gloves. I think this program builds your confidence as much as your body. Rock Steady Boxing is like a fast-paced support group that makes you sweat.
If you are looking for an opportunity to get a great workout, build some muscle, make some new friends, and pound some punching-bags, then I encourage you to try Rock Steady Boxing in your area to see if it’s right for you!
Without some sort of plan or framework, it is very easy to get lost along the way. Whether you have Parkinson’s disease or not, just having goals may not be enough, as unexpected obstacles can arise at the most inconvenient of times. There is so much in our lives that we can’t expect, but must just accept and move on, as best we can. Our perspective and flexibility can impact how we deal with adversity.
The following few tips are some thoughts and suggestions that you may want to consider. I hope that these tips might trigger some revelations for you.
Consider building a series of plans from your personal medical team, your support network, your health team (trainer, physical therapist, massage therapist, speech pathologist, etc.). Some of these networks may overlap and vary as your providers may change over time.
Keeping current on developments and timely releases about your illness is not only empowering but beneficial to both you and those who you choose to enlighten.
If you have early onset Parkinson’s disease, I strongly suggest for you to consider finding a Neurologist who is a Movement Disorder Specialist, as they have special training dedicated to this illness.
Don’t compare or contrast your Parkinson’s to anyone else’s. We each have our own flavor of Parkinson’s and we each have our own unique journey.
Timing our medications is a crucial component to making the most of our day. Maintaining and strictly adhering to a timely regimen where your medications can work at their best, takes experimentation and some trial and error.
Try not thinking of illness of any kind as a war, a battle, or a win or loss. Consider illness as an obstacle or an obstruction that must be worked around. No one wins a war. War is dark and violent. Maybe, a new perspective towards illness can take some of the anxiety out of it.
Explore the numerous therapies outside of western medicine to see if you can find one that offers benefit or relief. Get good referrals from friends and family.
Keep an open mind to relinquishing some of the responsibility for the good of lowering your stress level and improving your mental health.
Do what you can, while you can! Whether you are healthy or have illness in your life, consider that our control is limited.
While there is definitive change in our lives and the options may vary or seem more limited, we must recognize that we have more strength and control than we realize.
Bring a bit of peace and beauty into your home! If you are a nature lover and need a calming force that mesmerizes, might I suggest you turn on the captivating vistas of NatureVision TV now on Netflix. Season 3 unveils about 10 hours and 10 episodes of natural world diversity from ocean to jungle.
Whether you meditate with the video and soothing music softly playing in the background or choose to mute the sound just to appreciate the awe of the bounty of creatures and places, this video collection would be great for parties and get togethers. Try using this marvelous collection just as TV art, instead of your TV just being a blank canvas.
If you are a Netflix subscriber and want something unique and attractive to play throughout the day, like moving art, or just want peaceful television to wake and go to bed to, consider this wonderful collection of our planet’s gifts.
I will report more, soon, on other Netflix finds, both nature-related, and not, very soon.
The Magic isn’t gone, but it is fading fast. The art of magic will never die, but it may become blurred, as new technology replaces the beauty and purity of performance magic. Live magic is just that—it’s magical. When performed correctly and the magician has done his job, the participant feels that the impossible is, possible. Some magicians embarrass or make their audience feel stupidly duped. The magician is meant to impress but not to break the bond between audience and performer. Magic is for everyone: young or old, there is a place to appreciate the grace and fluidity of sleight-of-hand. One should appreciate the trickery of the eyes and misdirection. Cleverness is worth recognition!
The sad reality is that the neighborhood magic store has rapidly gone away for good, only to be replaced by the video game. This dying art has a long history, reaching back to ancient Egypt and possibly even longer. To lose the joy that this art has sprung on so many, and for so long truly is a tragedy, indeed.
I hope that as generations and technology continue to evolve, that the creative minds of those drawn to magic can continue to update and improve upon the wonders of magic. Magic can be reinvented and re-introduced to new audiences in novel ways as materials and new innovations appear.
I have written about the benefit of video games and Parkinson’s disease, but had a deficit of articles on the benefits of performing and practicing magic. I think that aside of the many years of enjoyment of entertaining myself and an occasional audience, magic has given me numerous gifts that I will quantify:
-Magic makes you think in order and organized linear steps.
-Magic forces the performer to communicate, socialize, and be more outgoing.
-Magic helps improve eye-hand coordination and joint flexibility.
-Magic is universal. Magic is entertaining. Magic is sheer fun.
-Magic doesn’t feel like therapy, but maybe it is!
Walt Disney is quoted to have said, “It is fun to do the impossible!” Magic is about making the impossible, possible, even if it’s just for a moment.
Winter is cold and Winter is icy,
The days are dark and the roads are dicey,
Snow can be pretty when it is new,
As it gets older it looks like burnt stew,
As I get older, the cold gets less tempting,
From occasions galore, I find myself exempting,
Okay, I admit my blood is quite thin,
Blame it on age, it isn’t a sin,
Ice and sleet, I really don’t like,
It probably goes back to being a tyke,
Starting today, I’ll stay inside,
I’ll sit by the fire with cocoa and hide.
My card to you for these holidays,
Is one of appreciation, in so many ways,
My focus is Parkinson’s but I’ll try to write more,
My goal is to share insight and options to explore,
As the holidays near and you may take on more stress,
Be kind to yourself, and worry less on the mess,
Enjoy your family and your treasured friends,
Keep the spirit, long after the season ends,
Thank you for reading and joining my site,
To all of you readers, I wish you a goodnight!
This morning I received one of those nuisance solicitations from a charity that I had never heard of and still can’t even remember. The caller was clever enough to use a phony id tag of someone we had previously called earlier in the morning. What a devious ploy!
The first thing she said was nearly the most insulting! “Is this Angela?” To which, I replied “Does this sound like, Angela?” I am a 51-year-old male, who sounds nothing remotely close to that of my lovely wife. Either she wasn’t listening, or didn’t care. Not a good start to getting my confidence!
The lady (loosely used) on the call was what I believe to be a sophisticated robocall. The charity organization claimed to be a breast cancer charity (breast cancer was instrumental in my mother’s death) which is a cause near and dear to me.
The female voice on the other end adamantly requested for me to agree to pledge some random amount. Going from high to lower but never addressing my reservations, I was growing more and more angry with the handling of this call.
I asked the voice, “Just how much the charity took and how much went to breast cancer research?”: Her response was disappointing:
“That’s a good question! Fifteen percent goes to research and eighty-five percent goes to administrative costs. Can I put you down for twenty-five dollars?” I couldn’t believe that she thought that I could have been so gullible to say anything near of affirmative! Thus, ended the call!
This is the time of year that charities bombard us with end of year requests. Be empowered, be informed, and don’t be shy to ask what that charity is doing with your hard-earned money. Unless you have a long-established relationship and are familiar with the charity or charities of choice, don’t be afraid to ask the hard questions. You have every right to ask where your money goes and how it is to be used. You also have a right to answers that satisfy your curiosity.
Here are some suggested questions for the charity fundraiser:
Are you a registered 501c3 not-for profit?
Are you on www.charitynavigator.org?
How much of my donation goes toward the cause and not administrative costs?
Do you work for the charity or are you a paid solicitor? If so, you might tell them, “I will save the charity money and make my donation directly—but thanks for reminding me”.
Do not feel pressured that this call is your one and only opportunity to contribute to the cause. If a charity is pressing you for a donation, take another look at the charity and do some background work.
It is easy to be lured into a convincing charity charade that sounds honest and true to purpose. If you want to know what kind of research was funded by the charity, then ask them. They should be proud of their work, not secretive! If you need time for research and to get answers, there is no reason why you can’t ask them to call you back later.
You are in the driver’s seat to your charitable giving. Don’t feel pushed and pressured by paid solicitors! You should feel confident and enthusiastic about the charities to which you give. The best way to be confident about your charitable giving is to know who, what, where, and how your donation will be used. Don’t be afraid to make a difference, just do your homework to make sure you are educated and satisfied with where your donation is going.