Category Archives: Philosophy
Be aware of the sun’s intensity and extreme heat!
Protect everything! If you are taking Sinemet, exposure to the sun may cause you to burn more easily! Wear a hat and sunscreen everything that you don’t want to burn.
Stay hydrated! Staying hydrated is not just good for the body, but your pills may function better as well.
Hot or cold Many PD patients, me included, can easily overheat on very hot days. For some reason, we don’t always self regulate our body temperature at peak performance. Pay close attention to your sweating and thirst.
Watch your salt–Too little salt may cause orthostatic hypotension (dizziness when getting up or lying down) and too much can cause high blood pressure, find a balance and ask your doctor.
Most of us are low on vitamin D! Have your vitamin D level checked. Sun helps with D, but sun ages and burns. Dairy has D but be careful with protein and your meds.
Moderation and body awareness will help keep you sun safe. Be sun smart and careful out there! Talk to your doctor about these issues. I am not a doctor and these are suggestions, not medical advice. Be well!
A comfortable routine is not always a bad habit.
Cats love it! The only real problem with routines is when you sacrifice an opportunity to maintain the routine. If the cycle that you are in is working for you, then by all means keep it, and don’t let go, but if the routine has gone stale or you see a need for correction, it might be time for a new tack.
Parkinson’s Disease can take away the very basic but vital skills that we treasure and sometimes take for granted. Facial masking, or loss of obvious facial emotion can make identifying a Parkinson’s patient’s state of emotion very hard to read, by observation. Due to muscle tightness and rigidity in the jaw and facial muscles, some patients find it difficult to smile.
Just taking the time on a daily basis and scrunching your face in the mirror, wiggling your tongue back and forth, and squinting your eyes and face can be a great way to keep the face a little more limber. That’s what I do!
A smile is not to be wasted nor forgotten. Use your smile and share it with the world. Sometimes we forget to smile and the power that comes with it. If those facial muscles are a challenge for your smile, do what you can to work to keep those facial muscles as limber as you can and keep that bright smile. A smile is a viral gift that often comes back, when shared with others.
We shouldn’t have to, but Parkinson’s disease may make us have to practice smiling, instead of just doing it naturally.
Last week, I had the opportunity to speak to a wonderful audience with Parkinson’s and their care partners, in eastern Virginia. It was a marvelous exchange of information and emotions. Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget. Staying on top of Parkinson’s disease, symptoms, medications, and health maintenance, is a full-time job!
The following are 5 pieces of knowledge that you will want to remember:
Is your neurologist a movement disorder specialist? If you have Parkinson’s disease and your neurologist isn’t a movement disorder specialist, you may want to see if there is one in your area. Movement Disorder Specialists complete extended training to focus on neurological disorders like Parkinson’s disease.
If you are taking antibiotics, your medication’s effectiveness may be hindered dramatically. I can speak from experience that after taking antibiotics for my tooth infection, I saw a huge decline in the efficacy of my daily regimen of Parkinson’s medications.
Don’t forget that if you are on Sinemet and you are protein-sensitive (protein in your diet may interact with your Levodopa), protein may decrease the full benefit of your dose. You may want try taking your protein later in the day or evening. Timing your medications for optimal benefit is part science, part art, and part luck.
When I am able to lower my stress level, I have found that medications work better, I feel calmer and more peaceful, and see less of my symptoms.
Eat smart and healthy! Talk to your doctor about how to improve your gut health.
Hyperbole on television, the evening news, politics, the Internet, and especially late night shows, is more common than ever. Our exposure to the dramatic and the end all be all is becoming a standard occurrence. Every day we wake to a new dilemma that involves “the greatest”. “the best”, “the most tremendous”. It is a contagion that gets ratings, sells newspapers, and is the marketer’s tool of choice. Watch any infomercial pitch and you are sure to hear hyperbole.
Hyperbole is ingrained in today’s messages. Usually, the message is louder and more shocking. Drama ensues.
A few years ago, I tried an experiment to catalog the many messages that I received from viewing 2 hours of one of the cable news channels. What follows are most of the crises discussed by the news team. I’m sure that I must have missed a couple. You’ll notice that most of these topics are not of the positive nature. I think that this proves that the daily messages that we are exposed to may very well have a direct connection to our thoughts and our feelings.
Here they are:
Train bombing, Missing Dolphins that were raised in captivity, Heavy rain, City Workers Steal Donated Items for Hurricane victims, Earthquakes, Sexual Abuse of a sports star, NASCAR Fight, New Orleans Health Care Crisis, Rising Oil Prices, Missing college student, Metro fire, Hurricane evacuation, Drought, Murder, Kidnapping, Corruption in government, Sex offenders, Train derailment, oil prices, poverty, inflation, drowning, mold and spore death, robbery, plane crash, home destroyed, stock loss, computer hacking, balcony collapse, contaminated water, abandoned animals, Cancer, lack of potable water, terrorism, taxes, forest fire, thunderstorms, Space shuttle disaster, and nuclear weapons.
If this is what you hear and see in 2 hours of reporting, imagine all the exposure your brain and entire emotional system are forced to process. If your system is compromised the negativity of these stories could have even more impact.
It might be an experiment worth attempting. Try shielding yourself from the barrage of news that is unavoidable and mostly unchangeable, to see if all aspects of your illness shows improvement. Consider a respite of time for yourself and those close to you. Maybe by doing something to counteract just one of these issues, a positive change might come.
Nothing is better than hyperbole-bad joke alert.
As Parkinson’s Disease Awareness Month comes to a close, as one well too familiar with this illness, I am compelled to bring awareness to those who have left us in the struggle. I am so very grateful to have known them and to have shared their stories and their lives. Losing friends, whether it is from PD or not, is a pain that I dread. Yet, death is a fact of life that none of us likes to talk about or truly accept. I am so grateful for the friendship and acceptance that our PD community continues to share. I truly hope that all 12 months become months of Parkinson’s Disease Awareness–not just one!
Never lose the curiosity and desire to learn more about everything! Science, art, music, history, and the world around us can feed our quest for knowledge and understanding as we continue to learn.
Try picking up a new talent or improving upon an old one. If you enjoyed playing an instrument, performing magic, shuffling and dealing cards, juggling, whistling, telling a joke, then think hard on what would bring you the greatest joy to add to your abilities, and explore it.
As we age, keeping focus becomes more of a challenge. Work on maintaining focus with brain games, puzzles, reading, and even video games.
Singing and keeping conversation are good for voice and concentration.
Challenging yourself and enjoying yourself at the same time, is very satisfying.
Music keeps me inspired, active, and makes my day so much more enjoyable.
I love to-do lists and marking off my completions–it just feels good!
Fear happens to all of us–when we can reduce our fear and anxiety, everything seems to get better.
Giving back and focusing less on ourselves can result in helping everyone involved.
Being bad can be fun–sometimes eating something that makes you smile, turning off the phone for a few hours, or having a late-night ice cream party can reignite the kid in us that we forget sometimes.
It is April and that means it is Parkinson’s Disease Awareness Month!
Everyday ought to be Parkinson’s Awareness Day! For each and everyone of us who lives with this illness, we know that our awareness is real and constant. Now, bring that awareness to those who you encounter or who are less familiar with this illness. Too often, much to my amazement, I meet people completely unaware of what Parkinson’s is and what it can do. We have got to do a better job of telling the world about this illness, and what it is all about.
I refuse to mix politics and ethics. I try to keep my nose out of politics on this site and provide my readers with a perspective that informs and allows you to make your own decision.
I have seen the life-changing impact that Meals On Wheels has made and continues to make on lives. Just the thought of erasing a program as important as this one, is heartless, cruel, and the sign of a system that is out of touch and totally unfamiliar with real human needs.
To reduce funding for the FDA and the NIH reduces our hopes for a speedy breakthrough or drug development. Our health matters and many of the best minds in research and future developments come from these organizations.
The elimination of the EPA could cause numerous devastating changes and have even more repercussions on climate change and various environmental factors that impact genetically sensitive people. The future of the animal kingdom on this planet is in even greater jeopardy, than it is right now.
Speak up! Let your voice be heard!
It is so important to share your story and how governmental decisions impact you and those you love.
I love Spring, and cannot wait for the weather to retreat! Spring means sun, warmth, and the rebirth of flora and fauna. Greenery galore and the eruption of color come with the season. It means more time outside to explore and take new photographs.
If you are having a less good day, here are a few ways to improve your day:
Book, create, initiate, or invite someone or make a plan for something to look forward in the near and distant future. By having something to look forward to (no matter how small), you create a to do item that you can work towards. Maybe you want to see a favorite band in concert or go to your favorite ice cream parlor, you are making plans.
Keep social and active! Get out and share information and good times with others!
Get Some Sun-but be cautious
Almost all Parkinson’s disease patients are low in vitamin D. PD patients who take Levadopa may be more be sensitive to sunlight. I see a Dermatologist at least once a year and suggest that you see one at least for a once a year checkup.
Some days are better than others–just remember that tomorrow is another day!
In Reference To My Art (up above)
Allergies, neck pain/headache, morning slowness, sinus congestion, post nasal drip, and cough all may come with the pollen explosion that comes with this time of year. I tend to not drink enough water and keep hydrated. I’m trying to drink more water. Stay hydrated!
If you are an animal lover, dog or cat person, intuitive, or just simply aware, these observations may not be as eye-opening as some of my epiphanies, but here are some of the observations, realized from living with Lily:
1. In her eyes, if I’m having a less good day, all she wants to do is be with me and make my day better.
2. Parkinson’s symptoms don’t disturb her. She loves me for who I am and what I am. I am part of her pack, no matter what.
3. When times are stressful or anxious, Lily is waiting in the wings with her ball or stuffed toy, to make me laugh or break the mood with a game of catch or fetch.
4. She reminds me not to take myself so seriously.
5. She reminds me that you can say an awful lot with just your eyes. Words are not always necessary to get your message across.