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ASoftVoice.com Blog Recognized As A Top 50 Blog By FeedSpot

FeedSpot Top 50 Parkinson BlogASoftVoice.com has been recognized by FeedSpot as a top 50 blog on Parkinson’s Disease!

We appreciate this honor and hope that this site does and will inform, share, and inspire. Thank you to all of our loyal readers and followers! Thank you to FeedSpot for selecting ASoftVoice.com and adding us to such a wonderful list of helpful and established blogs!

Adding our books to libraries!

Please help us get in your local library!

Six copies of A Soft Voice in a Noisy World are in the Fairfax County Public Library! If you are in Northern Virginia and want to read this book from the library, 6 copies are available for your convenience.

We are excited about making our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions, available as well!

If you would like for your local library to have copies available in your area or are interested in our recently released workbook, Dealing and Healing with Parkinson’s and Other Health Conditions please have your local library contact us or send us your library information.

Contact us at asoftvoice@gmail.com or call us at 772-444-7622. Thank You!
A Soft Voice in a Noisy World

It’s not all in your head–is it?

It might all be connected.In the near 200 years, since the discovery of Parkinson’s Disease (PD), the theories of how, where, when, and why the illness develops varies over time. Science is proving and re-enforcing the belief that everything is connected. When I was officially diagnosed in 1991 with PD, there were only a few doctors who pondered the connection between the gut and the brain. Now, there seems to be a much larger contingent who agree that our gut plays a major factor in our brain function.

The body has a mysterious way of masking itself or maybe it is just due to the complexity of the brain. For several years, my right shoulder rotator cuff hurt and I was unable to find long-lasting relief or an answer to where the pain was coming from. I had seen doctors, taken X-rays, seen massage therapists, and done physical therapy, and all proved to do little, over time. I was sure the pain resided in the shoulder. I was wrong.

I had to go all the way across the United States to find relief. A knowledgeable and very intuitive massage therapist who really paid attention to my arm discovered a very sore spot close to the mid point of my upper arm. Once she released the extreme pain that had been stored in that one spot, the pain in my shoulder dispersed. I would call the results near miraculous. She found the cause of my pain where no one had even thought of looking.

I think that this is sound evidence that there is just so much about the systems of the human body that we just can’t understand, just yet. Over time, new discoveries and breakthroughs may very well reveal astounding relationships between our systems or even unveil how our bodies process certain chemicals and alter our central nervous system. Until the day comes that modern science is capable of unveiling an all encompassing cure, it is our responsibility for exploring our own systemic connections, the roles that stress and anxiety play in our lives, our diets, our sleep patterns, and even how we think, feel, and react.

Our mind, body, and spirit depend upon one another. Maintaining that delicate balance is the key to our health. Finding the missing pieces that might lead us to fulfill the balance may require exploration and investigation outside our comfort zone and even that of our complete understanding. What I thought originated in my shoulder was actually being manipulated by a sore spot in my upper arm, a spot about a half a foot away. Looking closely at ourselves, with a fresh lens can reveal a great deal.

Some Rediscovered Observations–Worth Sharing

PathwayHere are some thoughts and tips that I wrote down awhile back and found again-I hope that they are    helpful:

1. It is a new year–full of exciting opportunities to explore. Keep your options open and remain flexible to new possibilities. Be open and a little cautious,too.

2. Keeping a positive and hopeful outlook isn’t always easy for some of us. Following through the hardest times makes even the smallest joys of life that much sweeter.

3. Staying social and active are crucial to anyone facing an illness. The stronger your support team–the stronger you are!

4. Diet, sleep, and stress can alter everything–it’s up to you how you monitor them.

5. Stay focused and on track. Targeting a cause can pinpoint your goal and keep you motivated and clear.

6. Embrace the day–there is no need to attack it.

Please share it–if you like it.

 

Remembering 2016!

2017! The Parkinson’s Disease (PD) Community lost 2 of its best known iconic figures in 2016. The most recognizable figure on the planet, the boxing legend and humanitarian, Mohamed Ali and Janet Reno, the first  US female Attorney General. Thanks to both of them for their awareness and advocacy in spreading the word on PD and the importance of educating the public, our government, and the medical world. They were very public faces who helped to express the needs of this community.

This year I have been to far too many funerals of dear friends who have succumbed to the symptoms of PD. It is a tragic reality– one, that I dread sharing with you.

It is my hope for 2017, that we see more cooperation from all parties involved in drug manufacturing, drug regulation, and drug research to lead to some understanding of just how our brains work. Someone, somewhere, sometime in the not so distant future is going to recognize a common element or link that may very well break open the mystery of Parkinson’s disease. Until that very special day, when the brain reveals itself, it is our duty to ourselves and our loved ones, to do all that we can for ourselves and our conditions.

I wish all of you, my friends and readers, a very healthy and happy New Year!

Anticipation is Palatable!

The new proof of our second book arrives in the next few hours and I feel like a kid on Christmas Eve awaiting Santa’s arrival!

Dealing and Healing with Parkinson's Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

If the proof checks out and it looks as good as I think it will, book number two, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit by Angela and Karl Robb, should be available for shipping on November 1st, 2016!

Dealing & Healing is a workbook for everybody and anybody dealing with a challenge in their life! Physical, emotional, spiritual–something in this book will resonate with you! Filled with over 100 eye-opening, expansive, and easy to follow exercises, devised for both individual use as well as support groups of all-kinds. This book picks up where our first book, A Soft Voice In A Noisy World: A Guide To Dealing and Healing with Parkinson’s Disease, leaves off! This fresh new workbook offers some new tools to your ever growing toolkit. Get ready, get excited, and get Dealing and Healing!

Dealing and Healing is available now for pre-ordering on Amazon.com and will be available wherever you like to buy your books, on November 1st! Stay tuned for the release and upcoming book signings across the country–if you would like to host a book signing, lecture, or meet and greet, please contact us at asoftvoice@robbworks.com.

Interview: Brian Huskey, Comedian and One of the Stars from the new TBS Show, People Of Earth!

Brian Huskey

The very funny Brian Huskey!

Today I am overjoyed to ask some questions of one of the funniest and most entertaining people on television. Brian Huskey may not be a name that you recognize immediately, but you’ve seen him in numerous movies, television programs, and commercials. Brian has been a staple on Comedy Central and Funny Or Die. He’s been making us laugh for years. Now, Brian has a new series coming out that I am looking forward to seeing. I have seen ads for the show and they are funny.

Beginning this Halloween on TBS, Brian stars with a collection of former Daily Show comedians and other cast members that you’ll recognize on People of Earth, a comedy about a support group for people who encountered alien abduction.

Brian, thank you for speaking with me. We both come from North Carolina. North Carolina has been in the press a great deal, lately. North Carolina has had an impact on many great comics and entertainers, like Andy Griffith, Lewis Black, Zach Galifianakis, Ken Jeong, and you, just to name a few.

 

Did growing up in North Carolina mold your comedy?
Absolutely. I think wherever you grow up has an influence on your art, sorry had to get real and deep right out of the gate. But I would say that for some it could be something to react against, but I love NC, and something about that place and the people made me feel able to look at things from the outside, as many folks do with comedy- deconstruct things, question things, satirize etc. But at the same time I had a real feeling of home and safety, and love for all the beautiful quirks of the south.
How did you get to where you are to be on a major new series? Did you do the stand-up circuit or do you prefer improvisation?
I have only tried stand up once or twice, and very half assedly when I did try it. It’s all been improv for me. That was my acting school, and my comedy education. Truly, finding the Upright Citizens Brigade Theater was the most important shift in my life. It is what help set me off on what had been a life long dream, but one that I deferred until I was 28.

And to answer how I got where I am to get on a series, I worked really hard for many, many years and had many disappointments. But over time, my reputation led to more work, and then people became more familiar with me, which I think makes the decision making process easier bc you are a known quantity. Dare I say I became more Starbucks and less Local Coffee Place You Don’t Know So Why Risk It? I know in that analogy I am sort of the evil corporate entity, but remember I am not the consumer in the analogy, the networks are. Networks aren’t known for shopping local so much.
Do you prefer stand up or improve? Where does your comedy come from?
Improv. I prefer to work with other people. I do love doing solo bits, but I don’t think I am disciplined enough to do stand up- working the same joke over and over until it’s perfect, building a set from those jokes. That works perfectly for some people. I’m sure it’s a personality type thing, but I like the discovery of improv- it’s a different kind of comedy high. It’s like a jazz sampler you would find near the checkout of the Starbucks analogy mentioned before.
I saw you play a doctor on Marketing to Doctors: Last Week Tonight with John Oliver (HBO). I laughed so hard that it hurt. Was your performance scripted or improvised? (Brian is the actor playing the doctor at the end of the clip.)
Thank you! Happy to cause pain with my comedy. That was all scripted, But a lot of the script was just action line descriptions of my action, so I messed around there.
Will your new show, People of Earth be scripted or improvised?
It is scripted, but we would always do a take or two where we came up with new lines. I think that is essential in comedy, bc sometimes the writing continues once it’s up on it’s feet. What you thought was a killer scene or bit and then when you do it, it might need that extra tweak or even a different take on the joke. But it always has to be in service of the scene. I think some scripted shows are too rigid about the script, but I also think they trust the actor’s to “write”. One of our directors told me he knew I could write from my improv. That made me happy.

Have you worked with many of these actors and comedians, before?
Da’Vine Randolph, who plays Ivonne, were on ABC’s Selfie last year. Nancy Lenehan, who plays Margaret, used to be on a ABC series called Worst Week and I guested and got to do my scenes with her. I did a kid’s play reading improv show with Oscar Nuñez once.

Do comics hangout with other comics?
Yup. So much so that we refer to noncomics as “civilians”. We are a weird people.
How do you determine what is funny?
I have no idea. Behavior is funny, or it can be.
Were you the original “Sonic guy”?
No, I Pete Grosz and TJ Jagodowski were the original guys. Then they wanted a heterosexual married couple scenario bc some of their fine customers were asking why they had two gay guys selling their burgers? Because apparently in Arkansas where the company started, two guys can’t sit in a non truck car together and not have it look gay.
I would say that you are the “every man” comic. You look mild-mannered but when you speak and act out, the results are hilarious and surprising. Is that accurate? Do you like to shock and surprise?
Oh yes, I do like to shock and surprise. Less so as I have gotten older, but still I love being the package I am, which is very straight, and then having some dark or insane thing come from me is a nice combo. I have a TV special coming out Dec. 2nd on Adult Swim called Mr. Neighbor’s House, and it is just that- very off but in a straight package. It’s a kid’s show that plays in a damaged mind.

Many thanks to Brian and best of luck to him on his new show and upcoming TV special!

 

I hope everyone enjoyed this interview.

Interview with The Shoe Maven – Tonya Walker and more from WPC2016

Tonya Walker on the cover of More Than Motion!

Tonya Walker on the cover of More Than Motion!

While in Portland,OR for the 4th World Parkinson Congress 2016 (#WPC2016), I visited several vendors and their booths. Here are some of the interesting products and people that I had the opportunity to encounter:

I had the pleasure of meeting and speaking with the creator and owner of the blog, The Shoe Maven (www.theshoemaven.com), Tonya Walker, at the More Than Motion booth. Tonya has been living with Parkinson’s disease since the age of 32. Not only is she a mother of a young son, a law professor, a wife, someone with Parkinson’s but also a clothing designer of her own cause-based fashion label (TSM Originals). I appreciate her strength, determination, and drive to make the community more aware. Her positive attitude and passion to make a difference shone through our discussion.

I spoke with Ms. Walker about her blog and her passion for sharing her journey, improving awareness about young-onset Parkinson’s disease, and her love for fashion. With over 120 pairs of shoes, I can say that Tonya blows away my measly 5 or 6 pairs. Tonya found benefit from DBS or Deep Brain Stimulation first by having the surgery on her left side in 2013 and then her right side in 2015. You can watch Tonya’s video at https://www.facebook.com/parkinsonsmorethanmotion/videos.

As I have shared with my readers for over 8 years, Parkinson’s disease requires a proactive pursuit to search for a combination/recipe of complementary therapies, medications, or medical procedures that work exclusively for you. No two Parkinson’s patients are exactly alike, and what may work for me, may not work for you.

Here are some useful tools that I found at the vendor exhibits that might be helpful to know about:

Global Kinnetics Corporation
Global Kinnetics Corporation just released The Personal KinetiGraph, a movement recording device to assist doctors in treating and managing their patients with movement disorders. The PKG Data Logger is a wrist-worn device that was recently FDA cleared for the recording of movement, associated with Bradykinesia, Dyskinesia and Fluctuations. The unit is a nice looking watch capable of providing important mobility information to your doctors. As of 2 weeks ago, the device was not yet approved in Virginia, but some states are currently using it right now. You may want contact them for information in your state at www.globalkineticscorporation.com.

LiftWare
I dropped by the LiftWare booth to try out their stabilizing handle and attachments for people having hand tremor and difficulty with a fork or spoon. The product worked well, appeared to be durable, and was comfortable to hold. If holding a fork or spoon is a challenge for you, due to tremor, I think LiftWare is worth investigating as an option. For more information go to www.liftware.com

LifeWalker
I dropped their booth to take their upright walker for a test drive. My first spin in the walker took getting used to, but I did see the benefit of this device. Unlike many walkers, the LifeWalker keeps the user upright and at eye level, allowing for face to face contact. I found the units well-built at first glance and well designed. To learn more go to www.lifewalkermobility.com.

These are not product endorsements. I encourage you to do the research for yourself and make your own decision. I hope that this was helpful!

Here are some more of my photos from WPC 2016:

A great crowd!

A great crowd!

lisalindatrolley

Keith, Mike, Lisa, Linda, Angela, and me in Portland!

johnbaumannwpc

Author, lecturer, John Baumann, my GoPro, and I!

karl-book-nook

Exploring the WPC2016 book nook and finding my book!

jackiepaulmewpc

Ran into my friends– fellow author, Jackie Hunt Christensen and her husband, Paul!

bevandmewpc

Ran into my friend, blogger,humorist, and author Bev Ribaudo (YumaBev – http://parkinsonshumor.blogspot.com/)

authorsoncouchwpc

Sharing a seat with my friends and authors Michael and Gretchen Church and behind us fellow authors James and Helen Buell Whitworth!

meandadolphowpcfixed

Great to see my friend, Adolfo Diaz!

Back from Portland–The 4th World Parkinson Congress (WPC)!

Portland Parkinson's Event!

4th World Parkinson Congress in Portland, Oregon, US!

Last week, over 4000 Parkinson’s advocates, patients, researchers, speech pathologists, neurologists, authors, those living with Parkinson’s, carepartners/caregivers, family and friends, and those interested in Parkinson’s disease all convened on the beautiful northwest city of Portland, Oregon. #WPC2016, an event only held every 3 years (next to be held in Kyoto Japan in 2019), assembled news makers, scientists, doctors, and patient experts who discussed the latest information in Parkinson’s.

Vendors spanning the globe brought the latest in equipment, tools, medicines and procedures, and therapies for improving the lives of those living with Parkinson’s.

Due to flight delays and adverse weather, my updates have been delayed, but watch for my next post for more pics and my talk with the Editor of the blog, The Shoe Maven, the fashionable and inspirational Tonya Walker, as well as some other observations from this wonderful event.

Here are some photos:

Sonia and a smaller Parky.

Sonia and a smaller Parky.

GLynis from New Zealand and me.

Dylis from New Zealand and me.

 

Saying "Hi" to Parky the Raccoon.

Saying “Hi” to Parky the Raccoon.

 

 

What a coast!

What a coast!

Great Parks!

Great Parks!

 

DC’s newest museum! Before it was done.

Do you know this museum?

Do you know this museum?

afrmuse4enh picofafrmuse1enh

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