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FDA Reaches Out To Learn More On Those With Parkinson’s Disease

Yesterday, I had the honor and privilege of testifying in front of the United States Food and Drug Administration (FDA), about symptoms of Parkinson’s and how they impact daily living. The event brought out at least 20 or more of the FDA’s neurological specialists and decision makers. I watched as they listened to my fellow panelists testify about their struggles with Parkinson’s disease and many took copious notes about what was said.

A good day at the FDA!

A good day at the FDA!

I am confident that they were listening to the plights of those of us facing a variety of issues related to our illness. It is my sincere hope and plea that something positive, like an ongoing dialogue between FDA and patient, or even a rapid push for speedier development of therapies is implemented. It is encouraging and wonderful to see interest from the FDA and the Parkinson’s community. This can be nothing but positive and hopeful!

Fighting Parkinson’s?

Listening to our bodies!

Listening to our bodies!

There is no question that Parkinson’s disease can be a tremendous struggle, filled with changes and developments. My theory is that when we ‘wage war, go to battle, or fight’, we highlight stress, violence, and turmoil. I don’t often quote film, but as Patrick Swayze says in the classic, Roadhouse, (okay it isn’t really a classic but it makes a point), ‘No one ever wins a fight.’ Avoiding and reducing stress are key to keeping your Parkinson’s symptoms at bay.  By avoiding and reducing known stress-related triggers, finding coping methods, like exercise, meditation, and yoga will assist in retaining your energy and flexibility.

Try considering your illness, be it Parkinson’s disease or any other disease, as a roadblock or obstacle to work around or to work with. Maybe if we visualize our illnesses in a less threatening state and see them more as “something that we can work with and not against”, our bodies may not have to exert so much towards the fight and can devote more energy to getting better. Just something to chew on.

I Didn’t Volunteer For Parkinson’s

The light squeezes through

The light squeezes through

I don’t remember anyone asking me if I wanted a life with Parkinson’s disease. No one offered me a choice to decline it’s arrival.

Parkinson’s disease has taught me so much about living! It has brought me a perspective, a purpose, and a focus! I met my wife and began more than 2 businesses because of this illness. Parkinson’s isn’t my friend but I won’t call it my enemy. I am truly grateful for what Parkinson’s has brought me and the friendships that I have made because of it!

I don’t tell people that I am fighting this illness , for that is too violent and negative. I prefer to say, “I am working with it and around this illness and am making the necessary adjustments to live with it”.

No, I didn’t invite Parkinson’s into my life, at least knowingly, but I am doing my best to accommodate for it.

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