Last week, I had the opportunity to speak to a wonderful audience with Parkinson’s and their care partners, in eastern Virginia. It was a marvelous exchange of information and emotions. Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget. Staying on top of Parkinson’s disease, symptoms, medications, and health maintenance, is a full-time job!
The following are 5 pieces of knowledge that you will want to remember:
Is your neurologist a movement disorder specialist? If you have Parkinson’s disease and your neurologist isn’t a movement disorder specialist, you may want to see if there is one in your area. Movement Disorder Specialists complete extended training to focus on neurological disorders like Parkinson’s disease.
If you are taking antibiotics, your medication’s effectiveness may be hindered dramatically. I can speak from experience that after taking antibiotics for my tooth infection, I saw a huge decline in the efficacy of my daily regimen of Parkinson’s medications.
Don’t forget that if you are on Sinemet and you are protein-sensitive (protein in your diet may interact with your Levodopa), protein may decrease the full benefit of your dose. You may want try taking your protein later in the day or evening. Timing your medications for optimal benefit is part science, part art, and part luck.
When I am able to lower my stress level, I have found that medications work better, I feel calmer and more peaceful, and see less of my symptoms.
Eat smart and healthy! Talk to your doctor about how to improve your gut health.
1. Why isn’t there a National CareGiver’s Appreciation Day?
2. Why isn’t there a day devoted to remembering friends and loved ones who have left us?
3. Why do we (the USA as a culture) shy away from the ill, the frail, and elderly, when they need the assistance the most?
4. Why don’t we educate students in high schools, colleges, or even younger kids with classes on illnesses and illness sensitivity training?
5. Don’t the ill and disabled have even more to teach than the healthy person, because they live with an even greater challenge than those of us living with a fully functional body?
6. Shouldn’t caregivers and carepartners receive a stipend or tax break for all that they do to take care of their loved ones plus keep them out of hospitals and nursing homes?
7. Why can’t we have a more progressive healthcare and insurance system that rewards proper nutrition and self-care with lower doctor bills and reduced insurance rates?
8. When are doctors going to come around and finally embrace complimentary therapies instead of the old cliché response, “Well, you can do it as long it doesn’t do any harm, I suppose.”?
9. Are we ever going to hear a doctor admit that he/she was ever wrong or made a mistake?
10. When is the medical community going to stop treating people with illnesses as someone who is incapable of making choices or knowledge of their own condition? Who is more knowledgeable of illness, the person living with it on a daily basis, or the doctor trying to treat and maybe even cure it?
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Thanks for reading!