In the near 200 years, since the discovery of Parkinson’s Disease (PD), the theories of how, where, when, and why the illness develops varies over time. Science is proving and re-enforcing the belief that everything is connected. When I was officially diagnosed in 1991 with PD, there were only a few doctors who pondered the connection between the gut and the brain. Now, there seems to be a much larger contingent who agree that our gut plays a major factor in our brain function.
The body has a mysterious way of masking itself or maybe it is just due to the complexity of the brain. For several years, my right shoulder rotator cuff hurt and I was unable to find long-lasting relief or an answer to where the pain was coming from. I had seen doctors, taken X-rays, seen massage therapists, and done physical therapy, and all proved to do little, over time. I was sure the pain resided in the shoulder. I was wrong.
I had to go all the way across the United States to find relief. A knowledgeable and very intuitive massage therapist who really paid attention to my arm discovered a very sore spot close to the mid point of my upper arm. Once she released the extreme pain that had been stored in that one spot, the pain in my shoulder dispersed. I would call the results near miraculous. She found the cause of my pain where no one had even thought of looking.
I think that this is sound evidence that there is just so much about the systems of the human body that we just can’t understand, just yet. Over time, new discoveries and breakthroughs may very well reveal astounding relationships between our systems or even unveil how our bodies process certain chemicals and alter our central nervous system. Until the day comes that modern science is capable of unveiling an all encompassing cure, it is our responsibility for exploring our own systemic connections, the roles that stress and anxiety play in our lives, our diets, our sleep patterns, and even how we think, feel, and react.
Our mind, body, and spirit depend upon one another. Maintaining that delicate balance is the key to our health. Finding the missing pieces that might lead us to fulfill the balance may require exploration and investigation outside our comfort zone and even that of our complete understanding. What I thought originated in my shoulder was actually being manipulated by a sore spot in my upper arm, a spot about a half a foot away. Looking closely at ourselves, with a fresh lens can reveal a great deal.
Parkinson’s Disease agonist medications (Requip and Mirapex) have been shown to cause compulsive behavior for some users. Some users have been shown to be prone to gambling addiction, sex addiction, shopping addiction, food addiction, and gaming addiction may occur. Compulsion may even entice users to go beyond legal limits to feed their desire or lose sense of time.
If you find yourself facing any kind of compulsive behavior that may be taking you away from friends and family, or is disrupting your life, tell your neurologist and someone close to you about breaking the cycle. Communication is so vital to your well-being. Carrying secrets only fuels the tension and stress on the mind and body. Letting go and making a change (with your neurologist’s help) might just be the right move forward.
As a child, I used to love winter. I would sled and ski and didn’t give the bitter cold a second thought. Now, I am less oblivious and less tolerant of the cold. My body functions and just moves more freely in warmer climates. Cold seems to cause greater constriction of the joints and even the muscles.
Winter doesn’t just bring on change of the physical body but with light changes and shorter days, the changes may impact your mood. Keep a close eye on your daily attitude and if you experience thoughts or feelings that you need to express (sadness, possible depression, or anger) consider getting help and stay on top of it, before it manifests into something you can’t control.
It has been several months since I experienced the strangest of days–a day without Parkinson’s symptoms, after living with it for over 30 years. What occurred was inexplicable, lasted 24 hours, and ended the next morning.
Try as I might, I search to duplicate the event and all that went with it. Right now, I have no conclusion–a few theories, but no answers. I will continue to analyze and deconstruct that day in hope to manufacture more of them.
What an amazing event to experience and now to ponder, just how to re-create. I don’t know how common it is for someone with over 30 years of Parkinson’s disease symptoms to experience a symptom-free day, but I am going to guess that it is probably a rare happening. This unlikely event just reinforces my deep belief that we can all uncover new pathways to our brain using both eastern and western medicine. Don’t stop looking for what might benefit you!
It happened on April 12, 2016, a most unbelievable day in about 30 years! I can’t explain it and neither could my very qualified neurologist. I wouldn’t have believed it if I had not experienced it.
I had a day of nearly 24 hours with NO symptoms of Parkinson’s disease! Of all days, that afternoon, I had a scheduled appointment with my neurologist who was just as dumbfounded as my wife and I were. If this isn’t a sign that staying and being open to new complementary therapies may be of value, well it sure looks positive.
I can’t say that I’ve recreated that day since, but I am hopeful and I will continue to re-construct just what I did to make Parkinson’s vacate my system for a day. Very strange-Very Wonderful–Very Real!