Blog Archives

Happy Spring!

Sometimes, this is how I feel!

I love Spring, and cannot wait for the weather to retreat! Spring means sun, warmth, and the rebirth of flora and fauna. Greenery galore and the eruption of color come with the season. It means more time outside to explore and take new photographs.

If you are having a less good day, here are a few ways to improve your day:

Aspire

Book, create, initiate, or invite someone or make a plan for something to look forward in the near and distant future. By having something to look forward to (no matter how small), you create a to do item that you can work towards. Maybe you want to see a favorite band in concert or go to your favorite ice cream parlor, you are making plans.

Don’t Hide

Keep social and active! Get out and share information and good times with others!

Get Some Sun-but be cautious

Almost all Parkinson’s disease patients are low in vitamin D. PD patients who take Levadopa may be more be sensitive to sunlight. I see a Dermatologist at least once a year and suggest that you see one at least for a once a year checkup.

Some days are better than others–just remember that tomorrow is another day!

In Reference To My Art (up above)

Allergies, neck pain/headache, morning slowness, sinus congestion, post nasal drip, and cough all may come with the pollen explosion that comes with this time of year. I tend to not drink enough water and keep hydrated. I’m trying to drink more water. Stay hydrated!

I’m Back and Ready To Work–Lots of News to Come In the Near Future!

Well, I am back from a brief hiatus! I am excited to say that I have loads to blog about and share–as well as a few surprises, coming soon!

If you are in the Northern Virginia area, we would love for you to join Angela and me for our book signing at the Fair Oaks Barnes and Noble bookstore in Fairfax, Virginia on March 30, 2017 at 4:00 PM EDT! We would love to show you our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit! Hope that you can join us!

Thank you for reading my blog and your continued readership.There is much more in store–just you wait!

Thanks, Karl

Understanding Parkinson’s!

Faces of PD

Parkinson’s Disease (PD) knows no boundaries, when it comes to age.  Young, middle aged, or older, we are all susceptible to the throws of this illness. Parkinson’s is a complex illness that is still not fully understood as to why one person may get the disease but others do not. It may be that PD is actually  more than one disease, under a dome of many.

I don’t know that there is making any sense of this illness. The diversity of symptoms and effective medicines vary so much that it is rare, if ever that two patients share the same symptoms or find the same benefit from a similar regimen.

Unraveling the complexities of this mysterious illness or illnesses continues to be a challenge for medical science. New discoveries may require a new and less conventional methodology for explaining this most elusive and cunning illness.

ASoftVoice.com Blog Recognized As A Top 50 Blog By FeedSpot

FeedSpot Top 50 Parkinson BlogASoftVoice.com has been recognized by FeedSpot as a top 50 blog on Parkinson’s Disease!

We appreciate this honor and hope that this site does and will inform, share, and inspire. Thank you to all of our loyal readers and followers! Thank you to FeedSpot for selecting ASoftVoice.com and adding us to such a wonderful list of helpful and established blogs!

Adding our books to libraries!

Please help us get in your local library!

Six copies of A Soft Voice in a Noisy World are in the Fairfax County Public Library! If you are in Northern Virginia and want to read this book from the library, 6 copies are available for your convenience.

We are excited about making our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions, available as well!

If you would like for your local library to have copies available in your area or are interested in our recently released workbook, Dealing and Healing with Parkinson’s and Other Health Conditions please have your local library contact us or send us your library information.

Contact us at asoftvoice@gmail.com or call us at 772-444-7622. Thank You!
A Soft Voice in a Noisy World

Respite

RespiteWe all need to pay close attention to our health. It is so easy to be encumbered and engrossed in our work and lose sight of ourselves. We owe it to ourselves, for the preservation of our clarity of thought and refreshing of the body to vacate from the office. Taking time for yourself isn’t a luxury–it’s a necessity! Just taking a few minutes more, every day, can make a difference in your mood, your creativity, and overall well-being.

Photo Creation — Orb 3D

I was experimenting with my phone camera and created this–I hope that you enjoy it! I call it Orb 3D.

If you think it’s cool, please share it. I am trying to keep active and creative and believe it is vital to staying well. Explore your creativity!

Taken by Karl Robb

Taken by Karl Robb

It’s not all in your head–is it?

It might all be connected.In the near 200 years, since the discovery of Parkinson’s Disease (PD), the theories of how, where, when, and why the illness develops varies over time. Science is proving and re-enforcing the belief that everything is connected. When I was officially diagnosed in 1991 with PD, there were only a few doctors who pondered the connection between the gut and the brain. Now, there seems to be a much larger contingent who agree that our gut plays a major factor in our brain function.

The body has a mysterious way of masking itself or maybe it is just due to the complexity of the brain. For several years, my right shoulder rotator cuff hurt and I was unable to find long-lasting relief or an answer to where the pain was coming from. I had seen doctors, taken X-rays, seen massage therapists, and done physical therapy, and all proved to do little, over time. I was sure the pain resided in the shoulder. I was wrong.

I had to go all the way across the United States to find relief. A knowledgeable and very intuitive massage therapist who really paid attention to my arm discovered a very sore spot close to the mid point of my upper arm. Once she released the extreme pain that had been stored in that one spot, the pain in my shoulder dispersed. I would call the results near miraculous. She found the cause of my pain where no one had even thought of looking.

I think that this is sound evidence that there is just so much about the systems of the human body that we just can’t understand, just yet. Over time, new discoveries and breakthroughs may very well reveal astounding relationships between our systems or even unveil how our bodies process certain chemicals and alter our central nervous system. Until the day comes that modern science is capable of unveiling an all encompassing cure, it is our responsibility for exploring our own systemic connections, the roles that stress and anxiety play in our lives, our diets, our sleep patterns, and even how we think, feel, and react.

Our mind, body, and spirit depend upon one another. Maintaining that delicate balance is the key to our health. Finding the missing pieces that might lead us to fulfill the balance may require exploration and investigation outside our comfort zone and even that of our complete understanding. What I thought originated in my shoulder was actually being manipulated by a sore spot in my upper arm, a spot about a half a foot away. Looking closely at ourselves, with a fresh lens can reveal a great deal.

Are you stuck?

In a rut?Is your ship at sea but can’t make it to port,
Do you play the game but your putt is just too short,
Are you stuck in a vortex that you can’t escape,
Are you stuck in minutia and wrapped in red tape,
It’s time to break free and break the trend,
Begin a new pattern and create a new message to send,
Take a fresh tact, chart a new path and go round the bend.

Change begins with one small step. That small step can feel like a huge leap, but sometimes to move ahead we must be willing to break out of our comfort zone.

Remembering 2016!

2017! The Parkinson’s Disease (PD) Community lost 2 of its best known iconic figures in 2016. The most recognizable figure on the planet, the boxing legend and humanitarian, Mohamed Ali and Janet Reno, the first  US female Attorney General. Thanks to both of them for their awareness and advocacy in spreading the word on PD and the importance of educating the public, our government, and the medical world. They were very public faces who helped to express the needs of this community.

This year I have been to far too many funerals of dear friends who have succumbed to the symptoms of PD. It is a tragic reality– one, that I dread sharing with you.

It is my hope for 2017, that we see more cooperation from all parties involved in drug manufacturing, drug regulation, and drug research to lead to some understanding of just how our brains work. Someone, somewhere, sometime in the not so distant future is going to recognize a common element or link that may very well break open the mystery of Parkinson’s disease. Until that very special day, when the brain reveals itself, it is our duty to ourselves and our loved ones, to do all that we can for ourselves and our conditions.

I wish all of you, my friends and readers, a very healthy and happy New Year!

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