Blog Archives

6 Warnings of Parkinson’s and Summer!

Be aware of the sun’s intensity and extreme heat!

  1. Enjoy A Beautiful Sunset!

    Protect everything! If you are taking Sinemet, exposure to the sun may cause you to burn more easily! Wear a hat and sunscreen everything that you don’t want to burn.

  2. Stay hydrated! Staying hydrated is not just good for the body, but your pills may function better as well.

  3. Hot or cold Many PD patients, me included, can easily overheat on very hot days. For some reason, we don’t always self regulate our body temperature at peak performance. Pay close attention to your sweating and thirst.

  4. Watch your salt–Too little salt may cause orthostatic hypotension (dizziness when getting up or lying down) and too much can cause high blood pressure, find a balance and ask your doctor.

  5. Most of us are low on vitamin D! Have your vitamin D level checked. Sun helps with D, but sun ages and burns. Dairy has D but be careful with protein and your meds.

  6. Moderation and body awareness will help keep you sun safe. Be sun smart and careful out there! Talk to your doctor about these issues. I am not a doctor and these are suggestions, not medical advice. Be well!

Comfortable Routines

A comfortable routine  is not always a bad habit.

Cats love it! The only real problem with routines is when you sacrifice an opportunity to maintain the routine. If the cycle that you are in is working for you, then by all means keep it, and don’t let go, but if the routine has gone stale or you see a need for correction, it might be time for a new tack.

Healthline Selects ASoftVoice.com Three Years in a Row as a Top Blog for Parkinson’s Disease!

Healthline Best Blogs Parkinson's Disease 2017I am so honored, humbled, and proud to announce that for the 3rd year in a row, Healthline has recognized my blog, http://www.Asoftvoice.com, as one of the best Parkinson’s disease blogs!  I enjoy blogging and sharing my experiences and thoughts with my readers. It means a  great deal to me to know that my site may help in some small way! Thank you for reading my posts and coming to my site! I hope that I can continue to offer the content that you enjoy and find to be of assistance.

5 Tips Parkinson’s Patients Should Know

Nutrition matters

Summer color and flavor

Last week, I had the opportunity to speak to a wonderful audience with Parkinson’s and their care partners, in eastern Virginia. It was a marvelous exchange of information and emotions. Parkinson’s disease comes with so many unwritten rules. Trying to find all that you need to know about this illness, all in one place, may be frustrating to collect. There is so much to remember and so much that you might forget. Staying on top of Parkinson’s disease, symptoms, medications, and health maintenance, is a full-time job!

The following are 5 pieces of knowledge that you will want to remember:

  1. Is your neurologist a movement disorder specialist? If you have Parkinson’s disease and your neurologist isn’t a movement disorder specialist, you may want to see if there is one in your area. Movement Disorder Specialists complete extended training to focus on neurological disorders like Parkinson’s disease.

  2. If you are taking antibiotics, your medication’s effectiveness may be hindered dramatically. I can speak from experience that after taking antibiotics for my tooth infection, I saw a huge decline in the efficacy of my daily regimen of Parkinson’s medications.

  3. Don’t forget that if you are on Sinemet and you are protein-sensitive (protein in your diet may interact with your Levodopa), protein may decrease the full benefit of your dose. You may want try taking your protein later in the day or evening. Timing your medications for optimal benefit is part science, part art, and part luck.

  4. When I am able to lower my stress level, I have found that medications work better, I feel calmer and more peaceful, and see less of my symptoms.

  5. Eat smart and healthy! Talk to your doctor about how to improve your gut health.

Stretch and Grow-10 Keys to Maximizing Your Happiness and Growth

  1. Never lose the curiosity and desire to learn more about everything! Science, art, music, history, and the world around us can feed our quest for knowledge and understanding as we continue to learn.

  2. Try picking up a new talent or improving upon an old one. If you enjoyed playing an instrument, performing magic, shuffling and dealing cards, juggling, whistling, telling a joke, then think hard on what would bring you the greatest joy to add to your abilities, and explore it.

  3. As we age, keeping focus becomes more of a challenge. Work on maintaining focus with brain games, puzzles, reading, and even video games.

  4. Singing and keeping conversation are good for voice and concentration.

  5. Challenging yourself and enjoying yourself at the same time, is very satisfying.

  6. Music keeps me inspired, active, and makes my day so much more enjoyable.

  7. I love to-do lists and marking off my completions–it just feels good!

  8. Fear happens to all of us–when we can reduce our fear and anxiety, everything seems to get better.

  9. Giving back and focusing less on ourselves can result in helping everyone involved.

  10. Being bad can be fun–sometimes eating something that makes you smile, turning off the phone for a few hours, or having a late-night ice cream party can reignite the kid in us that we forget sometimes.

Parkinson’s Essay Turns 200!

Tomorrow,  James Parkinson‘s essay will be 200 years old. Since his discovery, modern  medicine has made strides with L-Dopa and Carbi-dopa breakthroughs that have become the long-standing gold standard of regimens. Not to diminish the importance of the Levadopa breakthrough, but that was over a half a century ago.
New drugs and procedures are slowly trickling out, but no one drug that I know of has impacted Parkinson’s disease as that of L-Dopa. To this very day,  since my 1991 diagnosis, I have found benefit from this most amazing life-changing drug. I am very lucky to report that my dosage, even after all this time, is a lowly 3 pills (25/100) a day. I aim to keep my pill consumption to the utmost minimum, but only time will tell.

I am hopeful but impatient as I plead with any pharmaceutical company, researcher, doctor, or anyone connected with creating new innovations to the neurological world that a huge need is there, right now, and an escalating problem that will impact so many. I would offer detailed numbers, but at this time, as we have no hard numbers, for lack of a registry devoted to Parkinson’s patients, the numbers just aren’t gathered, yet.

On World Parkinson’s Day (4/11/17), like millions around the world, I will be participating in #UniteForParkinsons. Please join us to spread awareness via social media to the world about Parkinson’s disease.  Visit https://www.worldparkinsonsday.com/#world-parkinsons-day for more information!

Health Matters!

It is April and that means it is Parkinson’s Disease Awareness Month!

Everyday ought to be Parkinson’s Awareness Day! For each and everyone of us who lives with this illness, we know that our awareness is real and constant. Now, bring that awareness to those who you encounter or who are less familiar with this illness. Too often, much to my amazement, I meet people completely unaware of what Parkinson’s is and what it can do. We have got to do a better job of telling the world about this illness, and what it is all about.

I refuse to mix politics and ethics. I try to keep my nose out of politics on this site and provide my readers with a perspective that informs and allows you to make your own decision.

I have seen the life-changing impact that Meals On Wheels has made and continues to make on lives. Just the thought of erasing a program as important as  this one, is heartless, cruel, and the sign of a system that is out of touch and totally unfamiliar with real human needs.

To reduce  funding for the FDA and the NIH reduces our hopes for a speedy breakthrough or drug development. Our health matters and many of the best minds in research and future developments come from these organizations.

The elimination of the EPA could cause numerous devastating changes and have even more repercussions on climate change and various environmental factors that impact genetically sensitive people. The future of the animal kingdom on this planet is in even greater jeopardy, than it is right now.

Speak up! Let your voice be heard!

It is so important to share your story and how governmental decisions impact you and those you love.

Happy Spring!

Sometimes, this is how I feel!

I love Spring, and cannot wait for the weather to retreat! Spring means sun, warmth, and the rebirth of flora and fauna. Greenery galore and the eruption of color come with the season. It means more time outside to explore and take new photographs.

If you are having a less good day, here are a few ways to improve your day:

Aspire

Book, create, initiate, or invite someone or make a plan for something to look forward in the near and distant future. By having something to look forward to (no matter how small), you create a to do item that you can work towards. Maybe you want to see a favorite band in concert or go to your favorite ice cream parlor, you are making plans.

Don’t Hide

Keep social and active! Get out and share information and good times with others!

Get Some Sun-but be cautious

Almost all Parkinson’s disease patients are low in vitamin D. PD patients who take Levadopa may be more be sensitive to sunlight. I see a Dermatologist at least once a year and suggest that you see one at least for a once a year checkup.

Some days are better than others–just remember that tomorrow is another day!

In Reference To My Art (up above)

Allergies, neck pain/headache, morning slowness, sinus congestion, post nasal drip, and cough all may come with the pollen explosion that comes with this time of year. I tend to not drink enough water and keep hydrated. I’m trying to drink more water. Stay hydrated!

I’m Back and Ready To Work–Lots of News to Come In the Near Future!

Well, I am back from a brief hiatus! I am excited to say that I have loads to blog about and share–as well as a few surprises, coming soon!

If you are in the Northern Virginia area, we would love for you to join Angela and me for our book signing at the Fair Oaks Barnes and Noble bookstore in Fairfax, Virginia on March 30, 2017 at 4:00 PM EDT! We would love to show you our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit! Hope that you can join us!

Thank you for reading my blog and your continued readership.There is much more in store–just you wait!

Thanks, Karl

Understanding Parkinson’s!

Faces of PD

Parkinson’s Disease (PD) knows no boundaries, when it comes to age.  Young, middle aged, or older, we are all susceptible to the throws of this illness. Parkinson’s is a complex illness that is still not fully understood as to why one person may get the disease but others do not. It may be that PD is actually  more than one disease, under a dome of many.

I don’t know that there is making any sense of this illness. The diversity of symptoms and effective medicines vary so much that it is rare, if ever that two patients share the same symptoms or find the same benefit from a similar regimen.

Unraveling the complexities of this mysterious illness or illnesses continues to be a challenge for medical science. New discoveries may require a new and less conventional methodology for explaining this most elusive and cunning illness.

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