Today, I have a slight deviation to my usual positive message for an expression of frustration and a plea that I strongly feel needs to be expressed. Consider this my contribution to advocacy:
Congratulations if you are watching and reading the world news and can remain calm. I for one, am unable to digest the vitriolic, bombastic, childish, unproductive, hateful, remarks coming out of our nation’s capital.
When I was a child in the 1970s and 1980s our greatest fear out of Washington was the threat of nuclear war. The fear generated countless classic Hollywood blockbusters and the story slowly faded in the background, until now. The threat was probably there the whole time, but it did not remain on the front page and now, in addition to the chaos of the Trump White House, the threat of climate change, and the shake-up celebrity marriages, it makes one ponder just what to do?
If you are dealing with Parkinson’s or any disease, this is the last thing that you need on your plate. Healthcare, doesn’t mean much, until you need to access it. Our Congress, Senate, and President are entitled to full lifetime health coverage for little or no cost. It is more than a nice perk. They don’t need to vote on a healthcare plan for themselves, they’re just fine, thank you.
As for the rest of us, who actually, could use affordable healthcare, many of us are left dangling in the wind and waiting for a solution. It isn’t pretty, sexy, or exciting, but it sure is needed. I have never seen our government at such a standstill as it is at this time. A stagnant Congress and a President in turmoil leave the millions of people in need of affordable care under undue duress and the inability to move forward.
I know of many friends and fellow people with Parkinson’s who have to make the decision to cut back on their grocery bill to be able to pay for this month’s medication bill. It shouldn’t have to be that way. Sacrificing from your already reduced food budget to eke out enough for some or all of your medications is a sad and scary trade off.
Therapy caps have created a huge problem in limiting coverage for appointments for those of us who benefit from occupational therapy, physical therapy, speech therapy and rehabilitation. These outpatient services keep many of us out of the expensive doctor’s offices, crowding hospitals, and keeping patients active in their community.
I wish I had an answer. I wish I wasn’t so frustrated. I wish someone would hear our voices!
1. Why isn’t there a National CareGiver’s Appreciation Day?
2. Why isn’t there a day devoted to remembering friends and loved ones who have left us?
3. Why do we (the USA as a culture) shy away from the ill, the frail, and elderly, when they need the assistance the most?
4. Why don’t we educate students in high schools, colleges, or even younger kids with classes on illnesses and illness sensitivity training?
5. Don’t the ill and disabled have even more to teach than the healthy person, because they live with an even greater challenge than those of us living with a fully functional body?
6. Shouldn’t caregivers and carepartners receive a stipend or tax break for all that they do to take care of their loved ones plus keep them out of hospitals and nursing homes?
7. Why can’t we have a more progressive healthcare and insurance system that rewards proper nutrition and self-care with lower doctor bills and reduced insurance rates?
8. When are doctors going to come around and finally embrace complimentary therapies instead of the old cliché response, “Well, you can do it as long it doesn’t do any harm, I suppose.”?
9. Are we ever going to hear a doctor admit that he/she was ever wrong or made a mistake?
10. When is the medical community going to stop treating people with illnesses as someone who is incapable of making choices or knowledge of their own condition? Who is more knowledgeable of illness, the person living with it on a daily basis, or the doctor trying to treat and maybe even cure it?
I would love to know what you think! Please send your comments and don’t forget to subscribe to get new postings, if you like my blog. I am happy to announce that Twitter account will be active in the next day or so, so please follow me on Twitter very soon!
Thanks for reading!