Blog Archives

A Video To Inspire!

This is my first real attempt at an inspirational film. I hope you enjoy it and share it.

My First Inspirational Video!

I hope that you find this thought-provoking and calming! These are some of my many original photos mixed in with some thoughts. You may have to watch more than once to read everything. Thanks!

Two For Tuesday–More Photos!

These are 2 very different photos. One taken in Virginia and one of the NYC skyline. Just a little demonstration of everyday life and the beautiful world around us!

What does Thanksgiving mean to you?

For me, the holiday resonates with special memories of the whole family watching parades, football, and eating my late mother’s exceptional cooking. Those memories are treasures that line the walls of my Thanksgiving box for the rest of eternity. Those days are long past, but I am still fortunate to make special new memories with dear friends who mean so much to me. Times change, life moves quickly forward, and I am forced to accept change.

I think a keystone of this holiday is about one thing only, gratitude. In the hustle and bustle of shopping, cooking, pre-Christmas preparation, and Black Friday sales, the meaning of Thanksgiving gets blurred.

This year, I have lost more dear friends, neighbors, and close Parkinson’s disease colleagues than I can count on my fingers. Loss of loved ones, both friends and family are so bittersweet as I rejoice in having been part of their lives, yet mourn that those days have ended.

As the year quickly ends, I am ever so grateful for my wife and best friend, Angela, my wacky and hilarious chocolate lab, Lily, my relatives all across the United States, my dear Reiki and Parkinson’s families, and you the reader/subscriber who takes time out of your busy day to read my latest blog post. I am grateful!

Thank You!

Happy Thanksgiving!

Book Review: Parkinson Voice Project

Dealing and Healing with Parkinson's Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit

My many thanks  to my friends at the Parkinson Voice Project in Richardson, Texas for this generous review of our second book!

Book Review by LOUD Crowd® Member Carol Brandle

TITLE: Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook
for Body, Mind, and Spirit
BY: Angela and Karl Robb

Having a workbook to accompany the best-selling Parkinson’s book, A Soft Voice in a Noisy
World, provides an excellent wellness tool for individuals or group discussion. Questions in the
workbook are closely paired with chapters in the book. Additionally, some questions shine light
on new ideas, such as complementary therapies like Reiki, massage, acupuncture, and
reflexology.

Karl Robb brings the same positive attitude, hope, and strength to this workbook as to his
book, A Soft a Voice in a Noisy World. Exercises which reduce stress and reaffirm strength can be
done as individuals or in communication groups, such as The LOUD Crowd® groups at Parkinson
Voice Project. A caregiver or partner might use the questions to strike up meaningful
conversation with the affected person, whether Parkinson’s is the health concern, or some other
health conditions. Either format will help you balance the connection between mind, body, and
spirit.

It’s apparent that Angela and Robb write from a wealth of experience as they direct
questions to sensitive issues, such as “What are you willing to do to help yourself?” and creating
a timeline to improve communication with a health care provider. Angela was honored in 2015
as a White House Champion of Change in Parkinson’s Disease. She and Karl also author an award winning
blog, http://www.asoftvoice.com


Angela and I have been fans, friends, and Board members of the Parkinson Voice Project for several years. We encourage anyone unfamiliar with this organization to learn about the wonderful work that they do.

Community Update – Events and Online Resources

Parkinson’s Awareness

ParkinsonsDisease.net Reaches 10k Likes!

If you follow this blog, you know that I have been actively posting on the new Health Union site, www.ParkinsonsDisease.net. What you may not know is that this site recently made a rapid climb to 10,000 likes! Here’s where you come in—in honor of this success, you have the opportunity to vote for one of the fine charities below to receive a donation, if they win the vote count. Encourage your family and friends to vote as well. Vote today by clicking this link and scrolling to vote in the poll!

  • Parkinson Voice Project
  • Davis Phinney Foundation
  • Parkinson Association of the Rockies
  • Parkinson’s Foundation (National Parkinson Foundation/Parkinson’s Disease Foundation)
  • The Michael J. Fox Foundation for Parkinson’s Research

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Parkinson Voice Project – Parkinson’s Lecture Series

The Parkinson Voice Project has launched a lecture series which features Parkinson’s experts talking about topics affecting our community. They hold this lecture each month and it’s live streamed for anyone in the world to attend. They also archive previous lectures so you can watch the lectures that are of interest to you. Visit https://www.parkinsonvoiceproject.org/ShowContent.aspx?i=1876 for more information about upcoming lectures and view previous presentations which include lectures on wellness, physical therapy, cognitive challenges, making a Parkinson’s diagnosis, and Deep Brain Stimulation.

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Virginia Education Day – October 7th, 2017
If you live in or near Virginia, I hope to see at the Virginia Education Day in Williamsburg on October 7th, 2017. I am a member of the planning committee. The event is being held at Fort Magruder Hotel and Conference Center. The Education Day is has a diverse mix of wellness information including presentations by physicians, people with Parkinson’s, caregivers, and allied health professionals. Click this link to see the conference brochure and click here to register for this event.

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Living Well Conference 2017 – Parkinson Foundation, Western Pennsylvania

Join Angela and me in November in Pittsburgh for their Living Well Conference 2017, where we will be presenting and facilitating two breakout sessions. Read this link for all the details. We would love to see you there! We will also be selling and signing our books and audio CD collection at both events—we hope that you can make it!

Nature Heals!

I have just returned from a working vacation in the mountains of North Carolina. The experience proved to be nothing short of amazing, as I saw an improvement in almost all my symptoms! Strength, stamina, balance, gait, sleep, cognition, and productivity were all improved and recognizably noticeable.

Nature has a healing property. Just to be surrounded by the abundance of flowering, fluttering, and stirring plants and creatures can reunite you with your connection with the planet. In this modern world, we begin to lose that connection with earth and sky, only to focus on flat screens, texts, and our on-screen accounts.

Once leaving the bucolic beauty of the lush green forest and coming back to city life, I find myself wondering if this is my healthiest decision. Returning to the sights and sounds of nature re-invigorated me–I found it to be a struggle to return to civilization, albeit, at this time, a necessity. Don’t forget to garden it, walk in it, swim in it, or just be in it–don’t lose your connection to Nature.

Healthline Selects ASoftVoice.com Three Years in a Row as a Top Blog for Parkinson’s Disease!

Healthline Best Blogs Parkinson's Disease 2017I am so honored, humbled, and proud to announce that for the 3rd year in a row, Healthline has recognized my blog, http://www.Asoftvoice.com, as one of the best Parkinson’s disease blogs!  I enjoy blogging and sharing my experiences and thoughts with my readers. It means a  great deal to me to know that my site may help in some small way! Thank you for reading my posts and coming to my site! I hope that I can continue to offer the content that you enjoy and find to be of assistance.

News May Have An Impact!

Hyperbole on television, the evening news, politics, the Internet, and especially late night shows, is more common than ever. Our exposure to the dramatic and the end all be all is becoming a standard occurrence. Every day we wake to a new dilemma that involves “the greatest”. “the best”, “the most tremendous”. It is a contagion that gets ratings, sells newspapers, and is the marketer’s tool of choice. Watch any infomercial pitch and you are sure to hear hyperbole.

Hyperbole is ingrained in today’s messages. Usually, the message is louder and more shocking. Drama ensues.

A few years ago, I tried an experiment to catalog the many messages that I received from viewing 2 hours of one of the cable news channels. What follows are most of the crises discussed by the news team. I’m sure that I must have missed a couple. You’ll notice that most of these topics are not of the positive nature. I think that this proves that the daily messages that we are exposed to may very well have a direct connection to our thoughts and our feelings.

Here they are:

Train bombing, Missing Dolphins that were raised in captivity, Heavy rain, City Workers Steal Donated Items for Hurricane victims, Earthquakes, Sexual Abuse of a sports star, NASCAR Fight, New Orleans Health Care Crisis, Rising Oil Prices, Missing college student, Metro fire, Hurricane evacuation, Drought, Murder, Kidnapping, Corruption in government, Sex offenders, Train derailment, oil prices, poverty, inflation, drowning, mold and spore death, robbery, plane crash, home destroyed, stock loss, computer hacking, balcony collapse, contaminated water, abandoned animals, Cancer, lack of potable water, terrorism, taxes, forest fire, thunderstorms, Space shuttle disaster, and nuclear weapons.

If this is what you hear and see in 2 hours of reporting, imagine all the exposure your brain and entire emotional system are forced to process.  If your system is compromised the negativity of these stories could have even more impact.

It might be an experiment worth attempting. Try shielding yourself from the barrage of news that is unavoidable and mostly unchangeable, to see if all aspects of your illness shows improvement. Consider a respite of time for yourself and those close to you. Maybe by doing something to counteract just one of these issues, a positive change might come.

Nothing is better than hyperbole-bad joke alert.

Happy Spring!

Sometimes, this is how I feel!

I love Spring, and cannot wait for the weather to retreat! Spring means sun, warmth, and the rebirth of flora and fauna. Greenery galore and the eruption of color come with the season. It means more time outside to explore and take new photographs.

If you are having a less good day, here are a few ways to improve your day:

Aspire

Book, create, initiate, or invite someone or make a plan for something to look forward in the near and distant future. By having something to look forward to (no matter how small), you create a to do item that you can work towards. Maybe you want to see a favorite band in concert or go to your favorite ice cream parlor, you are making plans.

Don’t Hide

Keep social and active! Get out and share information and good times with others!

Get Some Sun-but be cautious

Almost all Parkinson’s disease patients are low in vitamin D. PD patients who take Levadopa may be more be sensitive to sunlight. I see a Dermatologist at least once a year and suggest that you see one at least for a once a year checkup.

Some days are better than others–just remember that tomorrow is another day!

In Reference To My Art (up above)

Allergies, neck pain/headache, morning slowness, sinus congestion, post nasal drip, and cough all may come with the pollen explosion that comes with this time of year. I tend to not drink enough water and keep hydrated. I’m trying to drink more water. Stay hydrated!

Understanding Parkinson’s!

Faces of PD

Parkinson’s Disease (PD) knows no boundaries, when it comes to age.  Young, middle aged, or older, we are all susceptible to the throws of this illness. Parkinson’s is a complex illness that is still not fully understood as to why one person may get the disease but others do not. It may be that PD is actually  more than one disease, under a dome of many.

I don’t know that there is making any sense of this illness. The diversity of symptoms and effective medicines vary so much that it is rare, if ever that two patients share the same symptoms or find the same benefit from a similar regimen.

Unraveling the complexities of this mysterious illness or illnesses continues to be a challenge for medical science. New discoveries may require a new and less conventional methodology for explaining this most elusive and cunning illness.

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