If you are an animal lover, dog or cat person, intuitive, or just simply aware, these observations may not be as eye-opening as some of my epiphanies, but here are some of the observations, realized from living with Lily:
1. In her eyes, if I’m having a less good day, all she wants to do is be with me and make my day better.
2. Parkinson’s symptoms don’t disturb her. She loves me for who I am and what I am. I am part of her pack, no matter what.
3. When times are stressful or anxious, Lily is waiting in the wings with her ball or stuffed toy, to make me laugh or break the mood with a game of catch or fetch.
4. She reminds me not to take myself so seriously.
5. She reminds me that you can say an awful lot with just your eyes. Words are not always necessary to get your message across.
Well, I am back from a brief hiatus! I am excited to say that I have loads to blog about and share–as well as a few surprises, coming soon!
If you are in the Northern Virginia area, we would love for you to join Angela and me for our book signing at the Fair Oaks Barnes and Noble bookstore in Fairfax, Virginia on March 30, 2017 at 4:00 PM EDT! We would love to show you our latest book, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit! Hope that you can join us!
Thank you for reading my blog and your continued readership.There is much more in store–just you wait!
Parkinson’s Disease (PD) knows no boundaries, when it comes to age. Young, middle aged, or older, we are all susceptible to the throws of this illness. Parkinson’s is a complex illness that is still not fully understood as to why one person may get the disease but others do not. It may be that PD is actually more than one disease, under a dome of many.
I don’t know that there is making any sense of this illness. The diversity of symptoms and effective medicines vary so much that it is rare, if ever that two patients share the same symptoms or find the same benefit from a similar regimen.
Unraveling the complexities of this mysterious illness or illnesses continues to be a challenge for medical science. New discoveries may require a new and less conventional methodology for explaining this most elusive and cunning illness.
Parkinson’s Disease agonist medications (Requip and Mirapex) have been shown to cause compulsive behavior for some users. Some users have been shown to be prone to gambling addiction, sex addiction, shopping addiction, food addiction, and gaming addiction may occur. Compulsion may even entice users to go beyond legal limits to feed their desire or lose sense of time.
If you find yourself facing any kind of compulsive behavior that may be taking you away from friends and family, or is disrupting your life, tell your neurologist and someone close to you about breaking the cycle. Communication is so vital to your well-being. Carrying secrets only fuels the tension and stress on the mind and body. Letting go and making a change (with your neurologist’s help) might just be the right move forward.
As a child, I used to love winter. I would sled and ski and didn’t give the bitter cold a second thought. Now, I am less oblivious and less tolerant of the cold. My body functions and just moves more freely in warmer climates. Cold seems to cause greater constriction of the joints and even the muscles.
Winter doesn’t just bring on change of the physical body but with light changes and shorter days, the changes may impact your mood. Keep a close eye on your daily attitude and if you experience thoughts or feelings that you need to express (sadness, possible depression, or anger) consider getting help and stay on top of it, before it manifests into something you can’t control.
Welcome to my wishlist of what could be, in a future world. Come dream with me:
11. I wish doctors had the same epiphany as Jerry Maguire: Fewer clients/patients and more personalized care.
10. I wish that every doctor in the practice sat in the lobby for a minimum of 2 hours to experience the uncomfortable furniture, the noise of the waiting room, and the need for a more soothing environment.
9. I wish that doctors would call their own switchboards to hear how difficult it is to try and navigate the bevy of options to choose from, wait in the cue for 25 minutes, and then get dropped, forcing you to either give up or start all over again.
8. I wish doctors evaluated the whole experience from phone call to waiting room to appointment from the patients’ viewpoint and took that into consideration.
7. I wish it weren’t so impossible to reach a doctor, when needed.
6. I wish doctors and staff listened better than they do.
5. I wish doctors’’ offices were more warm, inviting, bright, and welcoming.
4. I wish there were a separate waiting room for anyone with a contagion.
3. I wish doctors at least provided coffee or water to patients.
2. I wish doctors actually called their patients to check on them.
1. I wish telemedicine becomes an option for everyone, so that we can save time, money, stress, gas, gridlock, and frustration!
Today is the official launch of our second book!
RobbWorks (publishers of A Soft Voice in A Noisy World) unveils our 2nd book! Now available from Amazon, our new workbook is shipping and should be available from wherever you buy your books. The front and back of the book can be seen on Amazon.com!
Our second book, Dealing and Healing with Parkinson’s and Other Health Conditions: A Workbook for Body, Mind, and Spirit is an exciting tool that provides new exercises to help enhance the mind, body, spirit connection. This workbook combines elements from the first book, A Soft Voice in a Noisy World to create over 100 exercises to help open the mind, ease the body, and enhance the spirit. When the three components improve, are combined, and work together, we may regain and achieve balance.
The workbook is arranged in an easy to follow format that allows for quick access to information and corresponding tools to make you think, ponder, and unveil possible improvements to your condition. The workbook is designed both for individuals as well as facilitators and support group members. Specially designated areas are specifically labeled to help support and communication groups of all-kinds to generate deep and meaningful discussions.
Many thanks to all our friends who told us and inspired Angela and I to write this workbook! We were told over and over how our first book went beyond Parkinson’s disease and applied to other health conditions and life in general. We are excited and proud of this book! We think you will find this to be a tool to use over and over as you need it.
The new proof of our second book arrives in the next few hours and I feel like a kid on Christmas Eve awaiting Santa’s arrival!
If the proof checks out and it looks as good as I think it will, book number two, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit by Angela and Karl Robb, should be available for shipping on November 1st, 2016!
Dealing & Healing is a workbook for everybody and anybody dealing with a challenge in their life! Physical, emotional, spiritual–something in this book will resonate with you! Filled with over 100 eye-opening, expansive, and easy to follow exercises, devised for both individual use as well as support groups of all-kinds. This book picks up where our first book, A Soft Voice In A Noisy World: A Guide To Dealing and Healing with Parkinson’s Disease, leaves off! This fresh new workbook offers some new tools to your ever growing toolkit. Get ready, get excited, and get Dealing and Healing!
Dealing and Healing is available now for pre-ordering on Amazon.com and will be available wherever you like to buy your books, on November 1st! Stay tuned for the release and upcoming book signings across the country–if you would like to host a book signing, lecture, or meet and greet, please contact us at firstname.lastname@example.org.
It has been several months since I experienced the strangest of days–a day without Parkinson’s symptoms, after living with it for over 30 years. What occurred was inexplicable, lasted 24 hours, and ended the next morning.
Try as I might, I search to duplicate the event and all that went with it. Right now, I have no conclusion–a few theories, but no answers. I will continue to analyze and deconstruct that day in hope to manufacture more of them.
What an amazing event to experience and now to ponder, just how to re-create. I don’t know how common it is for someone with over 30 years of Parkinson’s disease symptoms to experience a symptom-free day, but I am going to guess that it is probably a rare happening. This unlikely event just reinforces my deep belief that we can all uncover new pathways to our brain using both eastern and western medicine. Don’t stop looking for what might benefit you!