Blog Archives

It’s The Little Things That Aren’t So Little!

I had a conversation the other day with a good friend who had a hard time seeing eye to eye with me about this tragic government shutdown. I say tragic because during this time, those who are living paycheck to paycheck and those in need of medical care, families trying to pay their rent or mortgage, those who are unsure whether they can pay this month’s heating bill or pay their cat’s vet bill are struggling to get by only because our politicians are unable to relate to the families that they are hurting . For anyone just trying to put food on the table, the shutdown can only make life harder.

Appreciating those calm moments of the day, a good laugh, or even a brief nap, may seem simple daily occurrences that are the good stuff of life that we too often take for granted. Too often, we are waiting for something big to land in our lap, but while we are waiting, we miss some of the crunchy goodness. Simple pleasures are often the best.

Playing with your dog in the first snowfall of the season or watching a seagull soar are just two of the magical moments to savor, treasure, and truly appreciate. These are moments that cost nothing and are beyond any kind of currency.

There is a great deal of kindness out there out but much of it gets silenced by louder voices. Many of the soft voices may not get heard, at first, but in time, with commitment, can lead positive change. Loud and noisy can only do so much, but one soft voice only needs to spark one other person to go viral. When the mission is right, everything can fall into place. Kindness isn’t in short supply, it just may need to be cultivated.

Hardships, shocks, tragedies, disasters, illness, deaths, and life tests will be with the human race as long as we occupy the planet Earth. The question for all of us is how often do you take the time to recognize those not so little moments of your life? It’s so easy to get caught up in daily life and forget to be grateful for those simple and little things. Practice gratitude today!

Messages to Ponder for 2019

Inspiration can come in many forms, be it words, photos, audio, or video. In the coming year, this site will incorporate a wider use of these tools to add to the informational and entertainment aspects of this site. I truly hope that if you or someone you know is seeking information, support, inspiration, or a fresh perspective on Parkinson’s disease  and other chronic conditions, that you might consider sharing this website with those looking for articles on living with illness. The archives on this site contains nearly 400 articles to read on Parkinson’s and living with illness. If you are seeking more content, check out my recent articles on ParkinsonsDisease.net.

The following is a condensed video of many of my messages from my 12 Days of Christmas. I hope that you enjoy it and feel free to share it with anyone that you think might find benefit:

 

What Every Person with Parkinson’s Needs to Know About Air Travel

Plane Travel!

Don’t be alarmed– but be aware, my fellow Parkinson’s disease travelers!

As if we didn’t have enough to worry about along our journey, it was released recently, that the Transportation & Security Administration (TSA) has a program called “Quiet Skies” that is noting behavior, looking for excessive fidgeting, perspiration, and cold stares by passengers. Supposedly, fifty passengers a day are identified.

We are being tracked and monitored both on the ground and in the air. Our habits, reading material, and reactions are noted and logged, if we bring any kind of attention to ourselves. The knowledge that anything out of the ordinary needs investigation is understandable, but when you are faced with a neurological disorder that can alter your walking, uncontrollable movement and body temperature regulation (both hot and cold), tremor, or balance issues- these physiological reactions are possibly red flags that could bring focus on those of us living with an illness.

Maybe, just maybe, through education and identifying ourselves as people with Parkinson’s and educating TSA agents about facial masking, dyskinesia, bradykinesia, as well as the numerous subtleties that can come with Parkinson’s, might be just what the doctor ordered. Instead of making the TSA wonder what we are going through, we need to create a teachable moment that might just lead to real changes.

People suspect and often fear what they don’t know about. Unless you live with Parkinson’s disease daily and are aware of the wide variety of symptoms and unpredictability of this illness, only through education and extra training will those unfamiliar with neurological disorders come to be educated.

You’ve Got To Be A Kid, Sometimes! Let’s Go To the Movies!

It isn’t often that I write a movie review.

Okay! In fact, I NEVER write movie reviews. I’m feeling nostalgic and re-connected with the past from a long-awaited 14 years. After 14 years, the sequel to The Incredibles is here! I saw it on Thursday, and it did not disappoint! I wish it hadn’t been over a decade and a half, but it was a blast!

If you loved the original, The Incredibles2 picks up right where the first left us—and that’s all you need to know about the sequel. Just know that the movie is full of action and humor. Enough said!

The geniuses at Pixar did not skimp on detail, sound, or music. This sequel is a fun house, chock full of gems including mid-century motifs of Knoll, Noguchi, Saarinen, Herman Miller furniture, clothing, cars, and architecture.

We had played hooky to go make time to see this movie, something we don’t do very often. The message here, as hidden as it may seem, you might want to:

1. Plan future events to look forward to
2. Treat yourself
3. Savor the little things
4. Avoid always being so serious
5. Laugh as much as you can
6. Work hard and play hard
7. Remember, it’s fun to act like a kid—when the time is right

Let your inner kid out, every so often and take it all in!

Uncovering Messages From Two Tough Guys

The great philosopher, Popeye, said “I am what I am and that’s all that I am.” At first glance, maybe that statement doesn’t appear to be all that deep, but if you look a little deeper, it means so much more.

We have our limitations, some we never explore and some may test us constantly. Our identity fluctuates with the role and position for the tasks needed to be fulfilled at the time. Trying to be all things to all people isn’t practical, easy, or healthy. Popeye knew his place in the world, in the end, he always fought the bully and won, got the girl, and took back his self-respect. In nearly every episode this average iron deficient occasional spinach-eater ended as hero.

Dirty Harry said “a man has got to know his limitations”. Between Harry and Popeye is the lesson of finding our balance. Icons, heroes, pop culture, and advertising bombards us with expectations and limitations that they alone try to put on us. As if daily living isn’t stressful enough, living by anyone else’s idea of how to live seems like an added pressure, that I don’t need.

Finding your target and keeping yourself challenged but not over-tasked, just might be the right balance. Each of has our own unique skills and abilities that distinguish us. Comparison isn’t fair or necessary when setting our personal goals. To each his or her own. Targets are made to be raised or lowered after several attempts of successes and near misses.

Keep aiming high! Passion and persistence can prevail!

Keeping Positive!

Keep Positive!

Keep Positive!

Taking Flight!

Taking flight!

Taking flight!

It is far easier to succumb to the will of gravity and fall than it is to fly. Flight takes practice, focus, precision, concentration, and fearlessness. There is only one way up and one way down, but getting up rarely is as fast as the way down. We all fall down, it is the determination in getting back up that matters.
Today, the clouds and winds may not be accommodating for flight, but the winds may shift and the clouds will part for you to try again to take your place among

the birds.

Join Us April 19 at 11AM EDT for our talk with eCareDiary.com!

Join me and my wife and carepartner, Angela, for a Q & A as we talk about our views on Parkinson’s disease. We are excited about this opportunity and encourage you to join us at 11 AM EDT on April 19th. Just click the link below to see how to enter our talk.  We hope that you can join us!

http://www.ecarediary.com/EFCRadioShow.aspx

eCareDiary.com webcast April 19th 11am EDT

eCareDiary.com webcast April 19th 11am EDT

April is Parkinson’s Disease Awareness Month!

Spread the word!

Spread the word!

If you didn’t know, April is Parkinson’s Disease Awareness Month!

Also, if you didn’t know, in September, the World Parkinson Congress 2016 (WPC) meets in Portland, Oregon where thousands of people with the illness, doctors, researchers, authors, and other experts in their fields will convene to meet and discuss what is new in the fight against Parkinson’s disease. If you haven’t looked into going, I would highly recommend that you do. This will be my third WPC event. For more information on the event, visit WPC2016.org

A Twenty Year Old Speech Rings True

I was going through my files of paperwork and came across years of documents that I considered to be motivational, inspirational, and truly worth being read and reread. You might even remember it.

Although this following post is not specifically Parkinson’s disease related, I find it to be sound and practical advice for everyone. I hope that you enjoy it, find at least 1 of the 10 pieces of advice to be a morsel to take away, and may even share once again with others:

Palo Alto High School Speech by Guy Kawasaki 6/11/95

10. Live off of your parents as long as possible.
9. Pursue joy—not happiness.
8. Challenge the known and embrace the unknown.
7. Learn to speak a foreign language, play a musical instrument, and play no contact sports.
6. Continue to learn.
5. Learn to like yourself or change yourself until you can like yourself.
4. Don’t get married too young.
3. Play to win and win to play.
2. Obey the absolutes.
1. Enjoy your family and friends before they are gone.

If I were to add to this thoughtful list, I might add – Tell the people in your life and those you care about, just how much they mean to you, while you still can!

 

advice worth consideration

Advice worth consideration

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