Trust me, I am not a reminder service, nor am I a medical professional, but with the soaring heat of summer, it may not be a bad idea for a few reminders to help keep your life a little safer:
- If you are taking Sinemet, pay close attention to direct sun exposure. Make sure to wear sunscreen and protection from the rays, so as not to burn.
- Check your medications for sun exposure side effects and talk to your neurologist and dermatologist about any moles, rashes, burns or bumps that are irregular, uneven, painful, changing color, or simply suspicious.
- Some of us with Parkinson’s have the challenge of self-regulating our body temperature. It is so vitally important to keep cool and to monitor if the sun is having any impact on you.
- Keep hydrated! I had a friend who was only drinking a little more than 4 ounces a day. When I found out how little he was drinking and he came back to hydration, my wife and I were amazed to see voice improvement, better cognition, better balance, and I dare say, a healthier look to his skin.
- If you have a pet or child, never leave them in a closed car without cool air blowing and water access.
- Don’t forget that many surfaces like concrete, blacktop, decking surfaces, and even wood can get blazing hot, making it very uncomfortable for paws and bare feet. If you have poor circulation or neuropathy, this could be very important.
- Be aware of your surroundings and your comfort always. Keeping aware will avoid some of those sun hazards.
- People with Parkinson’s are notorious for being deficient in vitamin D. Sunlight is great to help replenish your vitamin D level but pay close attention to too much direct exposure. Choose your time of day outside wisely and monitor your local weather for the safest time to walk your dog or go to the garden.
- Don’t forget a hat and sunglasses!
- Be sure to remember to always crack open at least one car window so you don’t return to a blistering seat and stifling air!
Use good, safe, solid, logic about being in the sun at its least intensity and keep cool!
Be aware of the sun’s intensity and extreme heat!
Protect everything! If you are taking Sinemet, exposure to the sun may cause you to burn more easily! Wear a hat and sunscreen everything that you don’t want to burn.
Stay hydrated! Staying hydrated is not just good for the body, but your pills may function better as well.
Hot or cold Many PD patients, me included, can easily overheat on very hot days. For some reason, we don’t always self regulate our body temperature at peak performance. Pay close attention to your sweating and thirst.
Watch your salt–Too little salt may cause orthostatic hypotension (dizziness when getting up or lying down) and too much can cause high blood pressure, find a balance and ask your doctor.
Most of us are low on vitamin D! Have your vitamin D level checked. Sun helps with D, but sun ages and burns. Dairy has D but be careful with protein and your meds.
Moderation and body awareness will help keep you sun safe. Be sun smart and careful out there! Talk to your doctor about these issues. I am not a doctor and these are suggestions, not medical advice. Be well!
It’s over–at least for this year! My beloved North Carolina Tarheels run for the NCAA Basketball Championship title for 2012 has ended with a crushing defeat from the young men of Kansas. Don’t worry about me–with years of basketball counseling, behavior modification, and heavy drinking, I will overcome this loss!
I have returned to the living and March Madness has ended for me. In spite of the Final Four still well ahead for the remaining teams, my interest is only in passing as I have no alliance to any of the contenders. Not to say that I won’t take a peak at any of the remaining games, I just don’t have any strong feelings one way or the other. I have broken free of the basketball tether to which I was entangled. I have returned from the dizzying world of the almighty bracket, once again.
The sun is shining. There is actually a world outside of my television screen–what do you know?
After experiencing a 45 second rattle from the 5.9 earthquake, I thought I would share some beauty to counteract the disturbances of the day. Please enjoy!
Do you find yourself losing track of time? Do you ever miss a dose of your medicine because you get distracted from the task at hand? Well, you are not alone. This is a common problem with Parkinson’s disease (PD) patients as we somehow find keeping track of time to be a challenge. Multi-tasking for someone with this illness is probably a mistake but if an orderly and defined task list with a defined time of completion is stated, there is a much better chance for that task to be fulfilled, as long as the individual is capable of performing.
So much of being capable is scheduling your medicines appropriately to your day. Keeping up on your daily regimen can be a full-time job in itself. The longer that you have this illness the more important it is to remain diligent in monitoring how your body is reacting to your medicines. Too little medicine in your system and signs of PD show through and too much medicine unleashes unwanted side-effects. On top of the maximizing of your medicines add the variables of how you slept the night before, how much stress you are under, what you ate and how much, and even your mood and state of mind. Even the weather can play a part in how you are functioning today. As I write this, I have no empirical research to back this statement up, but I know for me, weather has an impact on my condition and how the meds work or not.
Here are 5 tips or suggestions to getting more out of your medicines and your day:
1) Something as simple as wearing a watch that beeps on the hour can keep you aware of the day and alert you to when you may be due for your next dose. There are some elaborate and helpful timers and pill box systems to keep you on track for sale. If you are interested , Google “electronic pill box” or “pill timers” for more information.
2) I find a little caffeine with my medication speeds the uptake. This may not work for everyone and if you have heart problems or a problem with caffeine, don’t try it.
3) Calm your mind and body for at least 5 minutes a day with a meditation. As you get more used to meditation you can do it for longer periods. Try different types and see what works for you.
4) Keep as fit and active as you can be. Build a regimen that you can stick to. Try to incorporate stretching, balance, walking, and maybe weight training. Consult with your doctor and a qualified physical therapist or trainer who understands PD.
5) Challenge your mind daily. A daily crossword or Sudoku can be a wonderful way to get your brain going for the day–but keep track of your time!
This is my 50th posting. I would love to hear from you, the reader. If you enjoy this blog, please pass it on to others who may find value in it. Please subscribe to this blog and you will be automatically notified when this site is updated.
Thank you for taking time out of your day to read this. http://www.asoftvoice.com
There is so much gloom and doom on our cable, Internet, wireless, and any other media that I can think of, it makes me cringe. The bombardment of fear mongrels, doomsayers, television news pundits, Hollywood debufelons, and Charlie Sheen wannabes doesn’t help the world in any way! Negative energy is simply corrosive and corruptive to the Planet and its’ inhabitants healing process.
What you expose your body to, be it water, food, air, sunlight and radiation, stress, chemicals, and unseen forces like negativity, electro-magnetic fields, and emotional build-up play a vital role in how one copes with and fights off illness. For me, stumbling on to Reiki was the key that opened the lock to begin my path to healing.
I have heard people who know absolutely nothing about Reiki who have no comprehension of “energy work”, discount it, and call it “voodoo”. These people have no idea what they are saying, and it is to these negative ninnies I say, do the research and try it before you badmouth something that you don’t understand.
When I was first exposed to Reiki, I too discounted it, and thought that using one’s hands to transfer Universal life-force energy for relaxation, stress relief, and potential healing sounded outlandish! But, I had and have Parkinson’s disease! When you are ill, some measures outside the norm are necessary and completely justified. Be smart and avoid invasive untested therapies that may have irreversible effects, negative permanent results, or is a radical alteration to your regimen. It is best that you and your doctor agree on making any changes together, before making any changes.
After 12 years of practicing Reiki on friends, family, and myself, my wife, Angela, also a Reiki Master, we are taking this powerful complimentary therapy to the Parkinson’s community. Last Saturday was a day that reminded me just what Reiki has done for me. With the assistance of 8 other amazing friends and Reiki Masters we ran a Reiki For Parkinson’s Disease Level I Workshop for 21 students. As it was for me 12 years ago, I watched Reiki recipients as instant relaxation set in, tremors subsided, muscles released, facial masks washed away, eyes brightened, and lethargy was replaced with energetic zest! If it sounds incredible–well it was!
I am pleased to report that through Reiki along with massage, yoga, mild exercise, a hopeful attitude, and a vegetarian diet, I have held steady and reduced my dosage of medication rather than ramp up as is expected in Parkinson’s disease. The proof is in the results!
I hope to have results and feedback from the Workshop participants, so stay tuned for future updates.
Someone that I respect recently wrote an Op/Ed piece that I felt shined a more negative light on people who maintain a positive outlook on people dealing with Parkinson’s disease. My interpretation of the piece inferred that Michael J. Fox calling himself “lucky” or anyone who considers themselves lucky to have Parkinson’s, to be a “Pollyanna”. Pollyanna, (as I have read accounts and in full disclosure not read any of the books) went through extreme suffering but was grateful for what she did have. I see this trait as nothing but admirable. If seeing the glass half full as opposed to half empty, empty, or even dirty and cracked is Pollyannaish then paint me as a “Pollyanna”. Having lived over 25 of my 44 years of life with this challenging illness, I am not naive nor am I uneducated. I am well aware that this illness robs millions of people around the world of their ability to move, to work, or to function as they choose. The mind seems to get a mind all of its own and neither the mind nor the body wants to respond to one another.
Parkinson’s symptoms of tremor and rigidity appeared in my life at the early age of 17. I spent over 6 years without a diagnosis, never knowing what I was dealing with or how fast it might progress. Was I scared? Sure. Did I feel sorry for myself? Only, after I got booted out of Outward Bound for being considered a health risk to the rest of the hiking party did I feel a real loss, because of the bonds that I had made and my failure to complete what I had started. Thankfully though, my dismissal from hiking the rugged mountains of North Carolina led me to my last 3 or 4 doctors who finally diagnosed me with Parkinson’s disease. Not until years later, did I realize that it took my leaving the group to get diagnosed and move on with my life.
The diagnosis of Parkinson’s disease for most people, can be sheer shock and devastation, or sometimes provide a sense of relief such as, “I had a feeling that it might be Parkinson’s” is heard from someone newly diagnosed who was looking for the culprit behind the symptoms.
As a support group leader, a frequent speaker, an active advocate for Parkinson’s disease issues, and as an attendee at several conferences a year on issues related to Parkinson’s disease, I can honestly say that those people dealing with Parkinson’s disease who keep a positive outlook, appear to be doing far better than those who are less positive. Staying positive is a choice.
Once I received a diagnosis, I had an idea of what I was up against. Usually, people with early or young-onset Parkinson’s disease symptoms progress slower than older patients. The Disease can impair both mind and body, cognitive function, memory, speech, swallowing, balance, gait, posture, and numerous other challenges. Parkinson’s can unleash an array of physical and mental complications and with side-effects from Parkinson’s medicines almost every patient can have a unique combination of symptoms . Some people with Parkinson’s show little to no obvious physical impairments but may suffer strictly from cognitive issues or vice versa.
The really good news is that as bad as this illness is or may seem, there are numerous therapies, medications, exercises, doctors, and classes, support groups out there that can make a difference in your life and help you change your life for improvement. While I don’t discuss DBS (Deep Brain Stimulation) surgery, I have seen it help many friends and for some it has not been as positive.
Parkinson’s has taught me to appreciate every day, to appreciate and to truly be grateful for the good things and the simple pleasures in my life. Whether one has Parkinson’s disease or is in perfect health, the realization that a positive outlook not only makes you feel better but makes those around you feel better as well. I didn’t choose to spend the majority of my life with Parkinson’s disease, but I did. Sure, illness throws roadblocks and detours in the path, but that’s where the ability to adapt and creativity come into play. Any illness can change how you see yourself and may get in the way of your perception of who you really are. This is an opportunity to take a hard look at your life and observe that maybe a change in lifestyle is in order. Reducing stress and altering your life for the better in diet, exercise, and complementary therapies on top of neurological care can have a tremendous impact on mood and well-being .
I hope and wish for a cure for all of us. Until the puzzle of Parkinson’s disease is solved, I believe the best course of action is to stay informed, take the best care of your body and mind as you can, take your meds on time, eat low on the food chain, eat organic, and get your rest.
If every day were sunny and warm could you truly appreciate the loveliness without experiencing those cold gray damp days of winter? The balance of life exposes us to pain because without it, there is no knowing pleasure.
Take stock in the fact that people care about you. Focus on the simple things in your life that you can appreciate, like having a comfortable place to sleep, clean air and water, the beauty of Nature around, and so many more details of life.
I would like to know what you think.
I am constantly amazed at the beauty of the rising and setting of our sun. I hold a great appreciation for the beauty of the night sky. This week’s picture captures what was a truly inspiring sunset.