Today is the official launch of our second book!
RobbWorks (publishers of A Soft Voice in A Noisy World) unveils our 2nd book! Now available from Amazon, our new workbook is shipping and should be available from wherever you buy your books. The front and back of the book can be seen on Amazon.com!
Our second book, Dealing and Healing with Parkinson’s and Other Health Conditions: A Workbook for Body, Mind, and Spirit is an exciting tool that provides new exercises to help enhance the mind, body, spirit connection. This workbook combines elements from the first book, A Soft Voice in a Noisy World to create over 100 exercises to help open the mind, ease the body, and enhance the spirit. When the three components improve, are combined, and work together, we may regain and achieve balance.
The workbook is arranged in an easy to follow format that allows for quick access to information and corresponding tools to make you think, ponder, and unveil possible improvements to your condition. The workbook is designed both for individuals as well as facilitators and support group members. Specially designated areas are specifically labeled to help support and communication groups of all-kinds to generate deep and meaningful discussions.
Many thanks to all our friends who told us and inspired Angela and I to write this workbook! We were told over and over how our first book went beyond Parkinson’s disease and applied to other health conditions and life in general. We are excited and proud of this book! We think you will find this to be a tool to use over and over as you need it.
The new proof of our second book arrives in the next few hours and I feel like a kid on Christmas Eve awaiting Santa’s arrival!
If the proof checks out and it looks as good as I think it will, book number two, Dealing and Healing with Parkinson’s Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit by Angela and Karl Robb, should be available for shipping on November 1st, 2016!
Dealing & Healing is a workbook for everybody and anybody dealing with a challenge in their life! Physical, emotional, spiritual–something in this book will resonate with you! Filled with over 100 eye-opening, expansive, and easy to follow exercises, devised for both individual use as well as support groups of all-kinds. This book picks up where our first book, A Soft Voice In A Noisy World: A Guide To Dealing and Healing with Parkinson’s Disease, leaves off! This fresh new workbook offers some new tools to your ever growing toolkit. Get ready, get excited, and get Dealing and Healing!
Dealing and Healing is available now for pre-ordering on Amazon.com and will be available wherever you like to buy your books, on November 1st! Stay tuned for the release and upcoming book signings across the country–if you would like to host a book signing, lecture, or meet and greet, please contact us at firstname.lastname@example.org.
There is no denying that Parkinson’s disease (PD) is an awful and debilitating illness that makes life much more challenging. Sometimes, whether we like to admit it or not, we need help. A support group can be an excellent way of receiving the help that you seek.
As someone who used to shun support groups, I decided that I would develop my own style of group. I wanted a group where patients and care-partners could come and feel empowered and educated. A support group should not leave you feeling helpless, alone, or without hope. Our group shares information about new developments in the world of PD as well as what is working and what isn’t working. Often, group members suggest something to try or a tweak that maybe those seeking a suggestion hadn’t considered. In my mind, this is the model of the kind of support group that can really benefit both patient and care-partner.
Here are some suggestions to starting a support group that can empower your participants:
- Educating others and giving alternatives provides an opportunity to change one’s situation for the better.
- Maintaining a positive and hopeful spin on your meetings not only keeps the meetings upbeat but can make for a more united and cohesive group.
- Sharing doctor information can be one of the best ways to find the right doctor or neurologist for you.
- Sometimes, just going to a support group reminds you that you have more options than you thought.
- A support group is what the members make it. Like any group, the members keep the group alive and with care and gentle adjustment from group leaders to keep the meetings on track, a support group meeting can be a very healing and beneficial tool to contribute to your healing.
Parkinson’s Disease Puts Your Life In Perspective
I will not tell you that having Parkinson’s Disease (PD) is a walk in the park. This disease can dictate your life and clutter your schedule every which way. I have seen it take its’ toll on many a marriage and family. I have also seen PD bring people together and strengthen family bonds.
How you and your friends and family deal with your diagnosis of PD will play a large part in how you deal with this illness. Some friends are going to be your rock and will be there when you need them the most. Sadly, you may see some friends crumble and possibly distance themselves from you. This is the unfortunate reality that some friends can’t go beyond a certain limit of friendship. I think some close friends don’t want to watch you go downhill, an unfortunate but realistic problem. It is my belief that sometimes friends are more unable to cope with PD than the patient. Some people just cannot accept bad news.
Your true friends and family will shine. You’ll have no trouble identifying who is going to stand by you and who will jump ship. You may get a few surprises along the way. It is my belief that my true friends accept me whether I am healthy or ill, and if they don’t accept me for the state that I am in, then that’s the way it is.
Receiving a diagnosis of Parkinson’s Disease will make you stop and consider your future. It’s a sobering reality to get a grip on. Now is a good time to evaluate what it is you want to accomplish within the next 20 to 50 years of your life. The questions are important and probably obvious, but here are just a few:
- How am I going to continue to work?
- Do I tell my employer?
- What do I do now?
- How do I tell my spouse, child, relative, friend?
- What do I do next?
- Do I begin medicines or wait?
- Do I need a Neurologist even if I have a fine primary physician?
- If Parkinson’s is chronic and progressive is there anything that I can I do?
These are just some of the many questions that arise when someone is newly diagnosed, especially for the early onset Parkinson’s patient. I was diagnosed at 23 but saw symptoms as early as age 17. Now at 43 years old, I can’t control the disease but I can accommodate for it and plan around it.
At some point, if your PD progresses, there may come a time when an activity or function that you really enjoy is no longer possible. As disappointing as this may sound, keep in mind that you may just have to make adjustments and substitutions. Keeping active in both mind and body can go a long way to slowing the progression of Parkinson’s Disease. I believe that it is possible that if you take control of your health, early, you can keep PD in check.
It is important to know that there are resources and loads of valuable organizations that can help you answer your questions. There is an amazing network of Parkinson’s patients across the United States and the world. Many of us have been where you’ve been. While PD can be and often is a very individualized illness, sometimes sharing stories and information proves that many of us share a common situation. It is vital to understand that you are not alone with this illness.
I believe a support group is meant for empowering the attendees with information, options, and an to provide an understanding that the Parkinson’s community is just that, a community. As a unified unit our community can rally for better drugs, new therapies, better dissemination of information, and with hope, a way to stop, and end Parkinson’s Disease completely.
Below is a brief list of some helpful resources to get you involved:
- National Parkinson Foundation (NPF) – Find Local Resources in your Community – http://parkinson.org/Search-Pages/Search.aspx?pSearchOpt=Local
- American Parkinson Disease Association – National Young Onset Center – http://www.youngparkinsons.org/
- Parkinson’s Action Network (PAN) – http://www.parkinsonsaction.org
- Parkinson’s Disease Foundation (PDF) –http://www.pdf.org/en/resourcelink
- Parkinson’s Alliance – http://www.parkinsonalliance.org/
- Michael J Fox Foundation – Living with Parkinson’s – http://www.michaeljfox.org/living.cfm
I am not a medical professional and this information is my personal view. I am just sharing my medical journey with you, the reader. I encourage you to seek all avenues that can benefit your condition.