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Giving Shouldn’t Be Painful

This morning I received one of those nuisance solicitations from a charity that I had never heard of and still can’t even remember. The caller was clever enough to use a phony id tag of someone we had previously called earlier in the morning. What a devious ploy!

The first thing she said was nearly the most insulting! “Is this Angela?” To which, I replied “Does this sound like, Angela?” I am a 51-year-old male, who sounds nothing remotely close to that of my lovely wife. Either she wasn’t listening, or didn’t care. Not a good start to getting my confidence!

The lady (loosely used) on the call was what I believe to be a sophisticated robocall. The charity organization claimed to be a breast cancer charity (breast cancer was instrumental in my mother’s death) which is a cause near and dear to me.

The female voice on the other end adamantly requested for me to agree to pledge some random amount. Going from high to lower but never addressing my reservations, I was growing more and more angry with the handling of this call.

I asked the voice, “Just how much the charity took and how much went to breast cancer research?”: Her response was disappointing:

“That’s a good question! Fifteen percent goes to research and eighty-five percent goes to administrative costs. Can I put you down for twenty-five dollars?” I couldn’t believe that she thought that I could have been so gullible to say anything near of affirmative! Thus, ended the call!

This is the time of year that charities bombard us with end of year requests. Be empowered, be informed, and don’t be shy to ask what that charity is doing with your hard-earned money. Unless you have a long-established relationship and are familiar with the charity or charities of choice, don’t be afraid to ask the hard questions. You have every right to ask where your money goes and how it is to be used. You also have a right to answers that satisfy your curiosity.

Here are some suggested questions for the charity fundraiser:

  • Are you a registered 501c3 not-for profit?

  • Are you on www.charitynavigator.org?

  • How much of my donation goes toward the cause and not administrative costs?

  • Do you work for the charity or are you a paid solicitor? If so, you might tell them, “I will save the charity money and make my donation directly—but thanks for reminding me”.

  • Do not feel pressured that this call is your one and only opportunity to contribute to the cause. If a charity is pressing you for a donation, take another look at the charity and do some background work.

It is easy to be lured into a convincing charity charade that sounds honest and true to purpose. If you want to know what kind of research was funded by the charity, then ask them. They should be proud of their work, not secretive! If you need time for research and to get answers, there is no reason why you can’t ask them to call you back later.

You are in the driver’s seat to your charitable giving. Don’t feel pushed and pressured by paid solicitors! You should feel confident and enthusiastic about the charities to which you give. The best way to be confident about your charitable giving is to know who, what, where, and how your donation will be used. Don’t be afraid to make a difference, just do your homework to make sure you are educated and satisfied with where your donation is going.

Healing Becomes a Prime Time Show

Healing Becomes a Prime Time Show

The world is shifting faster and even more progressively to complementary medicine, than I would ever have imagined. While late-night television channel surfing, I found a program that appears to be both informative and comforting. This new show is on a channel that I rarely watch. Home to numerous reality and family related dramas, TLC is not a station that usually offers programming that thrills me. I will admit that this show really interests me.

I came across a new show called, The Healer. Let me say that as a Parkinson’s patient and a reiki master, I use the term “healer” very rarely and very carefully. I had to see what TLC was doing with someone who had the ego and gift of restoring one to health. To use the word “healer” takes on a serious responsibility.

Charlie, an Australian entrepreneur, has been using his “gift” for several years and seems to deliver results with varying success. Charlie admits that results may depend upon the malady and the severity of it. I respect that he takes his gift so seriously. He freely admits that some illnesses may not respond well to his energy work, while some may react better. I also like that he shares his gift at no charge.

Doctors on the show are amazed, without explanation, yet appear to be willing to make the mind-shift that energy work may have merit. They are witnesses of the inexplicable. The doctors don’t deny that after Charlie’s treatment, something substantial has just occurred for their patient. Skepticism is understandable from the medical community, but when they see results from complimentary therapies, they should be willing to acknowledge them. One of the biggest dilemmas facing energy workers and the medical community is that if they both worked together, the patient may very well see surprising new results and at minimal cost.

I have seen slightly over one episode so far. I am an energy worker. I find the delving and unveiling of energy work on prime time television as a huge leap in the right direction! Shows like this demystify and shed light on the benefits of touch. This television program helps to show that hands on work has much to offer. In the United States, patients are less likely to pursue energy workers. In my opinion, the reason that many doctor(s) discount or don’t understand the potential benefit of working with energy practitioners is that little to no research has been funded.

Not until seven years into my diagnosis of Parkinson’s disease, at the age of 32 was I introduced to Reiki. From day one, I went from skeptic to believer, immediately. After experiencing what I had so easily discounted, it turned out to be something life-changing. Reiki hasn’t healed me to where I am void of symptoms.  I do know, not scientifically, that Reiki has made my life considerably better, increased my quality of life, and slowed my Parkinson’s progression over these last 20 years!

Two For Tuesday–More Photos!

These are 2 very different photos. One taken in Virginia and one of the NYC skyline. Just a little demonstration of everyday life and the beautiful world around us!

Monday Photo-Sharing A Beautiful Day!

This was a wonderful walk full of Fall color and raining leaves. The wind was lightly gusting with a slight hint of the chill of coming Winter.

What does Thanksgiving mean to you?

For me, the holiday resonates with special memories of the whole family watching parades, football, and eating my late mother’s exceptional cooking. Those memories are treasures that line the walls of my Thanksgiving box for the rest of eternity. Those days are long past, but I am still fortunate to make special new memories with dear friends who mean so much to me. Times change, life moves quickly forward, and I am forced to accept change.

I think a keystone of this holiday is about one thing only, gratitude. In the hustle and bustle of shopping, cooking, pre-Christmas preparation, and Black Friday sales, the meaning of Thanksgiving gets blurred.

This year, I have lost more dear friends, neighbors, and close Parkinson’s disease colleagues than I can count on my fingers. Loss of loved ones, both friends and family are so bittersweet as I rejoice in having been part of their lives, yet mourn that those days have ended.

As the year quickly ends, I am ever so grateful for my wife and best friend, Angela, my wacky and hilarious chocolate lab, Lily, my relatives all across the United States, my dear Reiki and Parkinson’s families, and you the reader/subscriber who takes time out of your busy day to read my latest blog post. I am grateful!

Thank You!

Happy Thanksgiving!

10 Tips to Improving Your Life with Parkinson’s Disease and Other Health Conditions

10 Tips to Improving Your Life with Parkinson’s Disease and Other Health Conditions

Parkinson’s disease is an illness that may require varying strategies. It may take new and different tactics to work with the ever-evolving changes that may pop up over time. Here are a few pieces of advice to consider as they may help you as they have helped me:

10) Intake Matters – Consider everything that you put into your body. Stay hydrated! Eat as cleanly as you can (local organic fresh vegetables, balanced diet, pay attention to your nutrition) and going easy on processed foods. Try reducing and even eliminating soft drinks. Avoid artificial sweeteners! Diet and Parkinson’s disease seem to go together; which makes complete sense, as reams of research seem to point to the gut as a possible culprit for the illness. Since going vegetarian, by vastly reducing my soft drink intake, increasing my water consumption, and reducing my reliance on processed foods, I have noticed digestion and medication absorption both, seem to have improved.

9) Keeping Social and Well – Informed – Creating and maintaining a social life keeps you involved, knowledgeable, engaged, and active. A social network and/or a support group is an opportunity to connect with other like-minded individuals who are dealing with your condition. Sharing information together provides you with a resource for experience and wisdom from those who are living with illness as well as those who are caring for loved ones. Having a sounding-board of experienced people can be very helpful when trying to learn about medications, navigate local resources, find therapies, and share stories about your health care providers. Seek support!

8) Lowering Your Stress Level and Keeping Anxiety Down – There are techniques and complementary therapies like massage, yoga, meditation, Reiki, and Tai chi, which can reduce stress anxiety, and calm the mind; these are but a few of the many therapies that you might consider trying. Several of these therapies can help teach breathing techniques and ways to lower anxiety. Finding that balance of your mind, body, and spirit can have a significant impact on your health.

7) Special Doctor – If you have Parkinson’s disease or another kind of movement disorder, find a neurologist who is specially trained as a Movement Disorder Specialist. They have extra training and an understanding in neurological disorders.

6) Keeping Positive – A positive attitude is contagious. Making the choice of staying positive and identifying the good instead of the negative is important to create a healthy and conducive environment. Remember that you have a choice!

5) Gratitude – Hold on to your joy for life and the gratitude for all that is in your life! Appreciate what may seem like small things but really are not, is a good start. Medicine, doctors, clean water and air, a good meal, friends, family, and just being alive are all to be appreciated. Add the awe of a sunrise, a sunset, a good laugh, great conversation, and helping someone else, are all acts to be cherished.

4) Doing What You Can – Do as much as you can, while you can, and maximize your good days! Take advantage of everyday and make the most of them!

3) Be Heard – Get involved in your community through advocacy groups, local organizations, and share your voice about your journey with illness. Educate those around you about your illness and encourage friends and family to learn with you on how to improve the Parkinson’s community.

2) Do Something – If you are in denial, apathetic, or depressed, it may be very difficult to motivate yourself to do what you need to do. It may be helpful to seek help from a counselor or someone who understands depression. This may take small victories and small steps. It may take learning about the disease in small chunks. Know this, that everyone’s journey is different and that you can’t gauge one patient by another. The more proactive and motivated you are, the more prepared you will be. Being flexible and staying open to new opportunities can be very helpful.

1) You are Not Powerless – Realize that you are in the driver’s seat to your healthcare! You must be your own best advocate and make sure that you are doing your very best. Be proactive with conventional medicine, skeptical but open to other non-invasive therapies, and a willingness for change. A little hope and faith can go a long way!

I really do believe that we have the power to help ourselves. We have the power locked inside ourselves, we just need the right key to unlock it. I think it is up to us to find that key.

A Soft Voice In A Noisy World Book makes Healthline.com’s List of Books That Shine A Light on Parkinsons!

A Soft Voice in a Noisy WorldI was so surprised yesterday, when I came across this article from Healthline.com. I just discovered it, for the first time! They compiled a list of 11 Books That Shine A Light on Parkinsons. I am so honored to be on a list with such an amazing group of accomplished experts. This is a wonderful short list of really great books. Thank you, so much for adding A Soft Voice in a Noisy World to your list!

“Let It Go” – Reprise

Explore your creativity!

Clinging on to that which does not serve us only weighs us down. Rather than control our emotions, if not monitored closely, they may control us. I have seen anger and resentment consume the strongest of men and seen it bring them to their knees. I have seen a quick temper ruin friendships as well as careers. I have seen jealousy and greed destroy the trust of what appeared to be the most solid of marriages. Retaining negative emotions can do nothing positive. Why do we hold what we don’t need?

If you can make yourself sick, can you make yourself well? How often did your parents tell you that you were going to make yourself sick because of worry? Whether it was guilt, worry, anger, hate, anticipation, anxiety, or some other emotion, maybe we have the same ability to make ourselves well, if not better! We probably didn’t get ill overnight, so it is unlikely to think that we will get well overnight.

Letting go takes practice, discipline, and intuition. It takes timing. Knowing what to keep and what to release sometimes takes a leap of faith into the unknown. It requires bravery and will.

Not everyone is prepared to or immediately willing to release years of pent up anger, bitterness, hurt, or bad memories. Some of us are better than others at avoiding confrontation, forgetting our pasts, and discarding the regrets and losses of of our lives. Depending upon the severity of our emotional challenges, professional counsel may be required to realize what is necessary to move forward. I have little doubt that our emotions have a direct connection to entire body’s well-being.

Remember to let go of what you don’t need or just what doesn’t benefit you. That’s what I’m hoping to do.

–Reprise January 2012 – re-edited 2017

 

SaveSave

Enjoy #SingOut2017 Concert via Live Stream tomorrow 9/9 2pm CDT 

Watch the world’s largest Parkinson choir give a concert tomorrow, Saturday 9/9 at 2pm CDT. You can watch the performance either in person at Richardson High School

1250 W. Belt Line Road, Richardson, Texas 75080

-Complimentary Valet Parking

-Reception to Follow Performance

or watch the LIVE stream of the concert at the Parkinson Voice Project Facebook page.  For more information you can also visit: http://www.parkinsonvoiceproject.org/ShowContent.aspx?i=1834

It’s so inspirational and moving to witness over 100 unified parkinson voices as one loud harmony! You need to hear it and share the triumph of these singers as they raise their voice in song. I encourage you to listen and experience this magical presentation.

Just so you know, I am a supporter and board member of the Parkinson Voice Project and have been for over ten years.

A Time For More Compassion!

Today, I have a slight deviation to my usual positive message for an expression of frustration and a plea that I strongly feel needs to be expressed. Consider this my contribution to advocacy:

Congratulations if you are watching and reading the world news and can remain calm. I for one, am unable to digest the vitriolic, bombastic, childish, unproductive, hateful, remarks coming out of our nation’s capital.

When I was a child in the 1970s and 1980s our greatest fear out of Washington was the threat of nuclear war. The fear generated countless classic Hollywood blockbusters and the story slowly faded in the background, until now. The threat was probably there the whole time, but it did not remain on the front page and now, in addition to the chaos of the Trump White House, the threat of climate change, and the shake-up celebrity marriages, it makes one ponder just what to do?

If you are dealing with Parkinson’s or any disease, this is the last thing that you need on your plate. Healthcare, doesn’t mean much, until you need to access it. Our Congress, Senate, and President are entitled to full lifetime health coverage for little or no cost. It is more than a nice perk. They don’t need to vote on a healthcare plan for themselves, they’re just fine, thank you.

As for the rest of us, who actually, could use affordable healthcare, many of us are left dangling in the wind and waiting for a solution. It isn’t pretty, sexy, or exciting, but it sure is needed. I have never seen our government at such a standstill as it is at this time. A stagnant Congress and a President in turmoil leave the millions of people in need of affordable care under undue duress and the inability to move forward.

I know of many friends and fellow people with Parkinson’s who have to make the decision to cut back on their grocery bill to be able to pay for this month’s medication bill. It shouldn’t have to be that way. Sacrificing from your already reduced food budget to eke out enough for some or all of your medications is a sad and scary trade off.

Therapy caps have created a huge problem in limiting coverage for appointments for those of us who benefit from occupational therapy, physical therapy, speech therapy and rehabilitation. These outpatient services keep many of us out of the expensive doctor’s offices, crowding hospitals, and keeping patients active in their community.

I wish I had an answer. I wish I wasn’t so frustrated. I wish someone would hear our voices!

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